(I recently heard what it apparently sounds like for my daughters' with their cochlear implants and I was really upset by the type of sound that was conveyed. In talking about it at a parent group one mom told me her story. Her son, Jordan developed Spinal Bacterial Meningitis at age 6. As a result he lost his hearing. Following is a recount of his experience. Thank you, Jordan for your story. It really put me at ease! Like most parents it is important to me that my girls hear me and now I know they can! Helen)
"... after 11 days the doctors told my mom I was all better but I could not even sit up by myself or walk and everything was very quiet. My mom and I always sang songs and said "I love you" you before we went to sleep at night. I remember that my mom's voice was getting very quiet and far away. On September 13th I woke up and was afraid because I could not hear my mom's voice anymore and she was crying. I cried too.
For the next four months I couldn't hear anything. I remember my mom teaching me how to walk without falling and how to ride my bike but I was sad because I couldn't hear her voice.
She taught me to read lips and feel my throat so I would know how loud I was talking.She told me we were going to fix my ears.I was very happy and excited!
.... My mom and I went down to San Francisco .... the doctors were going to fix my ears so I could hear again! I was tired of reading lips and not understanding everything people said.
When I was 'turned on' and I heard the beep I yelled, :" I can hear!" and mom started to cry. So did I. Hearing the beeps were good but when I heard my mom's voice, I was upset. Her voice and mine sounded like a computer! The doctor's voice and audiologist sounded like a computer! I was real mad because my ear was not fixed! I did not want to hear like this!
My mom and I went back to the hotel room. She told me in her computer voice that she couldn't 'fix' my ear any better than it was now. I remember being very mad because I wanted my real hearing back, not a computer ear!
My mom told me I could choose to hear or not to hear. To hear, I would have to wear a processor. I took off the processor and went to sleep. I was sad and mad. I remember waking my mom up in the morning so she could put the processor on. I wanted to hear again, but I was still upset and sad.
My mom and I came to Tucker Maxon so I could learn about the processor and so I could hear better. I remember being very mad because I had to wear a processor to hear. I could not hear my friends when we went swimming. I was mad because the teachers told me I was deaf but I was not like the other deaf kids. I did not like learning to hear sounds that I once knew. I had to learn what everything sounded like again and that made me mad.
*READ THE REST OF THE STORY AT HANDS AND VOICES* or go here and click on the November 2010 issue.