DJ Demers - hard of hearing comedian

I have never heard of DJ Demers out of Canada who happens to be a hard of hearing stand up comedian. No signing but the typical speaking comedy performances he does. I discovered this guy the other day when I came across a video of him interviewing Sarah Churman on the Sharp Focus website.  An up and coming comedian who have won awards and recognition for his stand up comedy.  He was nominated in 2011 for "Best Stand-up Newcomer" at the Canadian Comedy Awards. He was also a finalist in the 2011 NBC Stand-Up for Diversity Initiative (you can see his name and face there), a finalist in 2011 Cream of Comedy for the $5000 prize, and took 2nd place at the 2010 Toronto Comedy Brawl with cash prizes.

An impressive list so far and for your information DJ Demers wears two hearing aids. He's stereo but I'm mono. And, no, not the contagious kind. Anyways, it's rare to find hard of hearing comedians out there who have done and continues to do stand up comedies. The other well known one is Kathy Buckely. But I'm sure many of you have this lingering question floating in your dainty little heads of yours, does DJ Demers know sign language? Was he born with sensorineural hearing loss or acquired later in life? Etc..etc...etc....(not that many but you get the idea).

And the answers are......

Well, check out my next blog and find out the answers. Well, maybe. I don't know. I'm pretty darned sure you'll get them. Just wait and see. On second thought.....

Hard of hearing person interviews Sarah Churman

Here's an interesting captioned video interview of Sarah Churman by DJ Demers of Sharp Focus. What makes this an interesting interview is that you have two hard of hearing people talking back and forth on a live video feed with DJ Demers out of Toronto, Canada and Sarah Churman out of Burleson, Texas. They're able to understand each other quite perfectly. The only difference between the two is that DJ Demers wears regular hearing aids in both ears while Sarah wears her Envoy implantable hearing aid in one (but soon to have her other implantable hearing aid that was donated to her for free by Envoy Medical will be activated in March).

D.J. DEMERS is a funny dude who wears hearing aids, but he doesn’t talk about them much.

He was recently nominated for a Canadian Comedy Award for best standup newcomer and was also a finalist in the prestigious Cream of Comedy competition. All this despite his hearing impairment. He also showcased for NBC at the Comedy Store in L.A. for their Stand-Up for Diversity initiative. What makes him diverse? Possibly his hearing aids.

D.J. has appeared in two episodes of the extremely intellectual show, ‘Cocktales’, on the Comedy Network. He has been profiled by the Toronto Star and ‘The Morning Show’ on Global. His videos have been featured in Eye Weekly and Bite.ca, and he has written for the Walrus Laughs and Virgin Mobile Canada. Most of the content had nothing to do with hearing aids.

These days, D.J. hosts and produces a monthly comedy show with Chuckle Co. at the Comedy Bar in Toronto. He is also the host of ‘Sharp Focus with D.J. Demers’ on The Accessible Channel. With his mixture of intelligence, playfulness, and not being able to hear-ness, D.J. is always a crowd favourite.

He also wears hearing aids.

Interesting! Be sure to visit DJ Demers in Facebook and support your hard of hearing comedians! But, hey, I did some stand up comedy before. And it wasn't easy but I sure did have some fun doing it. And ya gotta have a passion for doing it if you want to make something out of it. Although I do have a creative side in me like doing my Uncle Bob's House - a Pepsi parody video (you gotta watch the original Pepsi commercial to understand my parody video).



Ahem, anyway, the video interview of Sarah Churman is already captioned so be sure to turn on the CC button on YouTube if you need captioning. Thank you Sharp Focus for including captioning! The 36 million people with hearing loss in the United States thank you! I maintain my own standard to include captioning to my own videos at every opportunity.

Sarah Churman gets 2nd hearing aid implant

It won't be long until Sarah gets to hear the world in stereo instead of mono. Very cool. She underwent surgery on January 13, 2012 for her 2nd implantable hearing aid and will have her implant activated on March 8, 2012. All this was possible because of  Envoy Medical's generous donation presented by Ellen DeGeneres on her show that helped pay for the cost of Sarah's first surgery and gave her a 2nd implant, including the cost of surgery, for free.



Will her response to her 2nd activation be as dramatic as her first one? I'm sure she will be followed a lot more closely with news cameras around her come activation day. I mentioned in my blog about her first activation that was captured on YouTube that became an instant viral video of the year with nearly 10 million visits to date. People continue to learn about the new surgical implant even though she was all the rage in the news late last year. More people will certainly learn about the Envoy implantable once she gets it activated on March 8.

Good luck, Sarah! Couldn't happen to a better person.

Concerned Citizens for Disability Advocacy on Stem Cells for Deaf Babies

A blog called "Concerned Citizens for Disability Advocacy" (CCFDA) shared an opinion about the recent brouhaha by some Deaf people who are against stem cells experimentation in the field of regenerative medicine that could help babies with hearing loss. This blogger on CCFDA explained why he/she will not support such a petition that is against stem cells treatment for sensorineural hearing loss deaf babies.

After reading everything on this petition site Concerned Citizens For Disability Advocacy Blog will not and does not support this petition nor ever will and here is why.

This valuable Stem Cell Research could potentially help millions in the future. Why would anybody in their right mind want to stop research that could help others in the future unless they have some hidden agenda or selfish motives?

What next are these same people who are pushing this petition going to push for laws to take away these same types of children from their parents who are trying to help them or want to help them so others can be helped in return?

What a sad nation and a society we have become when the gift of helping others is being silenced if you will by this exclusive group pushing this petition.

It truly sickens me to no end.

Another blogger of In the Country of the Deaf, the Hearing Man is Culturally Deprived
had this to say:

A year ago I was reminded of this fact when I was trying to “help” people with hearing conditions and was set straight. Deafness is viewed as much a culture and identity to some as it is viewed a “handicap” to others. You can read the article from last year here: HEARING LOSS – GIFT OR A DISEASE?

I have the utmost respect for the culture and identity of the deaf and only want to “help” those who want to be “helped.” (Unfortunately, even words like “help” have huge implications…it seems almost every word I use is charged with the potential for offense.)
I do have one question which is spinning around in my brain at 2am while my tea grows cold and my back whispers conspiracies to my neck. This is not a challenge but merely an effort to know better and learn:

If the “with hearing” child of parents “with hearing” were to suddenly go deaf, the parents would probably do everything within their means to recover the child’s hearing.
If the deaf child of deaf parents were to suddenly gain audism, would the parents do everything within their means to remove the child’s hearing?

I would love to receive people’s reactions to this. Please fee free to comment below.

Healthfully – David

So far, there are a few deaf bloggers who have blogged about this potentially life-changing event.

FDA Approves Phase I Stem Cells for Babies with Hearing Loss

UPDATE: Check out one of the deaf children's progress here.

There's a new FDA approved cord blood stem cell safety study to be done on deaf children age 6 weeks to 18 months who acquired sensorineural hearing loss (nonsyndromic deafness). This is a year long study.

Children’s Memorial Hermann Hospital and Cord Blood Registry® (CBR) are launching the first FDA-approved, Phase I safety study on the use of cord blood stem cells to treat children with sensorineural hearing loss.

The study, which will use patients’ stem cells from their own stored umbilical cord blood, is the first-of-its-kind, and has the potential to restore hearing. This follows evidence from published laboratory studies that cord blood helps repair damaged organs in the inner ear.

The year-long study will follow 10 children, ages 6 weeks to 18 months, who have sustained post-birth hearing loss. Children who are deaf as a result of a genetic anomaly or syndrome are not eligible. To ensure consistency in cord blood stem cell processing, storage, and release for infusion, CBR is the only stem cell bank providing clients for the study.

......
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Researchers will obtain and process the patients’ stored cord blood for treatment. The cells then will be given to the patients via IV infusion, and patients will be observed for several hours in the hospital.

Patients will return to the hospital to repeat all tests except the MRI at one month and one year, and all tests with an MRI at six months.

“This study is exciting because it might offer a non-surgical option for some children with profound loss,” Linda Baumgartner said. “More importantly, this is the first treatment with the potential to restore normal hearing.”

The new Phase 1 study already began in April 2011 and will end April 2015 although the collection on final study results will end in April 2014. This study will use stem cells from cord blood saved at a cord bank after a baby is born. Stem cells from the deaf baby's cord blood will be done via IV transfusion back into the child. Parents whose deaf children qualify for the trial study will decide whether to try the new procedure or not.

Since this news came out it didn't take long for an outcry in the form of a petition for culturally deaf people and others to decry the IV transfusion stem cell study as:

....inhumane and unethical and condemn this hospital, corporation, other collaborators and the FDA for treating our Deaf infants in this experiment as their guinea pigs.

The original petitioner went so far as to claim such procedure as dangerous and that it carries "long lasting risks" but never elaborated on exactly what those "long lasting risks" are. However, there is a similar but previous safety study using cord blood stem cells on children with cerebral palsy age 1 to 12 years old that began in January 2010. Final data collection on outcome ends in February 2012 which is next month.  Ironically, there appears to be no objection from any particular protest group for this IV transfusion safety study for babies and older on reversing their cerebral palsy condition.

The MCG team follows on the heels of a pilot study at Duke University which is exploring if cord blood can be readily applied to infant’s with palsy like symptoms in the first two weeks after birth. Both teams are looking to verify the anecdotal evidence that cord stem cells can be used to ‘cure’ CP children. If successful, the work at MCG and Duke University may provide parents with hope that storing a child’s cord blood could be an effective shield against cerebral palsy.

Cord blood IV transfusions have been done in children and adults.

To be safe, most cord blood transplants done so far have been in children and smaller adults. Researchers are now looking for ways to use cord blood for transplants in larger adults.

This first ever FDA approved study on hearing restoration (sensorineural hearing loss) for deaf children describes the study:

Acquired sensorineural hearing loss is characterized by a loss of functioning hair cells in the Organ of Corti, with greater hair cell loss correlating with more severe hearing impairment. Children with sensorineural hearing loss experience difficulty developing normal language which usually leads to poor academic and social development. Currently, there are no reparative therapeutic options available, and treatments are designed to augment the diminished function of the injured Organ of Corti.


Pre-clinical data suggest progenitor cell infusions may enhance intrinsic repair mechanisms in the Organ of Corti which may restore hair cells. This treatment could ultimately lead to hearing improvement. Human umbilical cord blood (hUCB) is an available, autologous, stored progenitor cell population available for potential therapeutic use. The primary objective of this study is to determine the safety of autologous hUCB infusion in children with acquired hearing loss. The secondary objective is to determine if functional, physiologic and anatomic outcomes are improved following hUCB treatment in this patient population.

This may turn out to be a promising result since it says that pre-clinical data suggest that such a procedure may restore hair cells thus lead to hearing improvement. This is obviously a much more natural process, if proved successful, involving the baby's own stem cells from the baby's umbilical cord (cord blood) could ultimately turn out to be much better option than cochlear implants. In fact, if successful would shorten the prediction time scale to seveal years on a reversing sensorineural hearing loss instead of a few decades away. Over a year and half a ago in my blog I commented that in 2004 a prediction was made that an application for hearing loss rather than a cure could be at least twenty years away (or by 2024) by Dr. Rubel. In another article in 2004 Dr. Rivolta said a cure could be possible in 10 to 15 years away (by 2014 to 2019). In 2009 in the Department of Otolaryngology University of Miami Ear Institute's newsletter quoted believing they could be 10 years away (or 2019) from a cure at the earliest possible timeline. But most scientists seem to concur that a cure or a very applicable treatment on reversing hearing loss would be seen within their (the scientists') lifetime...and that's not very far off folks.

2012 - the year of synergism for Deaf, deaf and hard of hearing owned businesses

Happy New Year readers and fans!

I think 2012 will be the year where synergy would begin to emerge among Deaf, deaf and hard of hearing business owners. On a Facebook page "Meet Deaf CEOs" supported by Convo Relay (a deaf owned and operated VRS technology company) it shows pictures of at least 140 separate deaf-run business owners (e.g. CEOs, executive officers, etc) put on display in a show of marketing power and business spirit. Quite exciting to see that list growing. But what's disheartening is to see no pictures of deaf and hard of hearing business owners as non-signers sitting alongside with Deaf business owners.

Bear with me here for a moment. 

When it comes to running a business I don't like to use the word "entrepreneur" anymore because it doesn't quite accurately reflect what business owners do even though running a business is a risky financial venture in of itself.  After 5 years some 60 to 70 percent of new businesses would have already failed in today's depressed economic climate compared to 10 years ago when the percentage was at 50 percent where new businesses would have failed after 5 years. For those who run and own their own businesses I call them "innovators" because that is what they do, they innovate. They inspire. They introduce something that's new for their customers and clients. It could be a new product, idea, service or a business concept. Moving from a concept that was once a stodgy, heavy, and slow to something that now require a bit of shove to change people's mindset, status quo and backward thinking. Business owners are the dreamers. They are the designers. They are the innovators. 

In the history of Video Relay Service (VRS) business Ed Bosson is widely recognized as the "Father of Video Relay Services" who began a trial experimentation on VRS in 1995, a time when the World Wide Web was making it's presence in public.

While managing the statewide 7-1-1 service with the Public Utility Commission of Texas (PUCT), he pioneered VRS with a four-city trial then a statewide trial, both in 1995.

Ed Bosson, who is Deaf,  relayed a powerful message on what he has learned about the power to bridge the communication gap regardless of hearing status by recounting how hearing parents reacted to using the new VRS for the first time with their deaf children.

"I got many calls from weeping parents who for the first time were able to communicate comfortably with their kids."

That was back in 1995 some 16 years ago. A powerful reminder that communication technology is the most important key for the successful linking between deaf and hearing people.

Seven years later in 2002, another rising communication technology company, sComm, was able to finally market this face-to-face communication technology product in 2006 called the UbiDuo. sComm is one of the 140 deaf CEOs listed in Convo Relay's Facebook. The company's product also produced powerful results helping realize that communication technology, again, is a crucial component and key in bridging the communication gap between hearing and deaf people. And it, too, produced the same story of heartfelt appreciations from hearing parents on using a new communication technology to communicate with their deaf children as did with the Ed Bosson's story.

"I cannot find a word to describe our joy and relief to see Dana and his family finally be able to communicate freely after waiting 50 years. For us, his parents, to watch the joy on the faces of all the family, to hear them express it in words and actions, and to see Dana be able to spend several hours doing nothing but communicating with the family was an incredible experience. It was his 'time to talk' and no note pad needed."

Indeed, no note pad needed.

That's the definition of synergism in action which is the "interaction of elements that when combined produce a total effect that is greater than the sum of the individual elements" such as seeing the contribution of a communication technology between Deaf, hard of hearing, deaf and hearing people whether they know sign language or not by bringing them together. That's the money shot. That's the ultimate key for success. The ability to market themselves as business entities and be seen as valuable innovators and contributors to society. That's where the value lies when it comes to surviving in today's harsh business climate where a business cannot afford to alienate potential customers and clients whether they're Deaf, deaf, hard of hearing, or hearing people regardless of communication preferences. Communication technology helps bridge that mysterious and even tenuous communication access that we all seek.

Only recently I am noticing this synergism which is starting to spread among innovators and facilitators such as the Business Convention and Expo of the Deaf, Deaf Nation, Synergistic Business Solutions, and even the The M Project, for example. But the one thing that I find missing is the lack of synergism seen between Deaf, deaf/hh, and hearing people.  Which is why I've kind of wrinkled my nose when I saw the list of names of only Deaf CEOs in Convo Relay's Facebook. This is by no means a negative thing here. I'm simply bringing up a larger question to the forefront and ask why aren't deaf and hard of hearing business innovators who happen to be non-signers not included in this whole synergistic process? In order for businesses to survive they must continuously reach out and seek like minded people when business survival is crucial in an ailing U.S. economy, especially when communication technology is ripening under their noses. They simply need to take advantage of it - lock, stock and barrel.  Focusing exclusively or primarily on Deaf businesses and innovators will only guarantee a limited growth and success. But for us as Deaf, deaf and hard of hearing people we do have the upper advantage over our hearing business competitors. We know what to look for because the bottom line for all of us has always been about communication access. There are 36 million of us in the United States. I'd say that's an awfully big niche market to tap into. Even more so would be to tap into the rest of the population of hearing people because communication technology is already available to help ensure that opportunity.

The stage continues to ripen as we speak, more years ahead of us.

For example, let's take a look at this newly opened Deaf owned and run pizza business in San Francisco, California called Mozzeria that opened their doors on December 9, 2011. They use both the ZVRS telecommunication technology and the UbiDuo face-to-face communication technology (see Mozzeria's Promotional Partners in the blog page section).  If Mozzeria does the right thing by incorporating the necessary communication technology strategy and approach, they can only succeed on bringing in more hearing and deaf customers to the tables whether they know sign language or not. I was once a manager for Domino's Pizza in Maryland back in 1992/93, I know what it's like to run and operate a pizza business as a hard of hearing person. Communication has always been essential between employees and loyal customers. It's not an easy thing to maintain and this was before we had any of these communication technology we see today for deaf and hard of hearing people. It can only get better because we are already here......now.


Here's my bold prediction.

I predict that a deaf owned and run company will someday become the Apple or Google version, not necessarily the equivalent, with its ability to foster, enable and encourage innovation among deaf and hard of hearing employees.  This company would be run and operated mainly by deaf and hard of hearing people along with their many hearing co-workers where language and communication preferences would not be a barrier but an inspiration to learn from each other regardless of hearing or cultural status. A place where anyone could walk into a building and instantly become aware of this intuitive concept called "real time communication access." A concept where communication could be done effortlessly at any time of the day with anyone, anywhere, Deaf or not. Technology would ultimately be key in making this dream become a reality where visual and verbal communications would merge seamlessly as one. This would be a matter of time until it happens but we're already seeing signs of this happening right now. But for this to work everybody needs to be a part of this new reality and future by including deaf and hard of hearing business owners who are innovators in their own right. They are a part of a much larger number of innovators than Deaf innovators. But why should Deaf business owners include them? Well, these deaf and hard of hearing business owners struggle, too. And it makes a lot of sense to include them in this synergistic process. Efforts should be made to reach out and include them on a regular basis. We all have the one thing in common and that's the issue of communication access. That's the one common and constant theme for those who deal with deafness on a daily basis.

The time is now. It's 2012. Welcome to the new year.

Innovate. Inspire. Inquire. Indulge. Incorporate!

Seek that new synergy and become even more successful. We cannot afford not to.