After reading everything on this petition site Concerned Citizens For Disability Advocacy Blog will not and does not support this petition nor ever will and here is why.
This valuable Stem Cell Research could potentially help millions in the future. Why would anybody in their right mind want to stop research that could help others in the future unless they have some hidden agenda or selfish motives?
What next are these same people who are pushing this petition going to push for laws to take away these same types of children from their parents who are trying to help them or want to help them so others can be helped in return?
What a sad nation and a society we have become when the gift of helping others is being silenced if you will by this exclusive group pushing this petition.
It truly sickens me to no end.Another blogger of In the Country of the Deaf, the Hearing Man is Culturally Deprived
had this to say:
A year ago I was reminded of this fact when I was trying to “help” people with hearing conditions and was set straight. Deafness is viewed as much a culture and identity to some as it is viewed a “handicap” to others. You can read the article from last year here: HEARING LOSS – GIFT OR A DISEASE?
I have the utmost respect for the culture and identity of the deaf and only want to “help” those who want to be “helped.” (Unfortunately, even words like “help” have huge implications…it seems almost every word I use is charged with the potential for offense.)
I do have one question which is spinning around in my brain at 2am while my tea grows cold and my back whispers conspiracies to my neck. This is not a challenge but merely an effort to know better and learn:
If the “with hearing” child of parents “with hearing” were to suddenly go deaf, the parents would probably do everything within their means to recover the child’s hearing.
If the deaf child of deaf parents were to suddenly gain audism, would the parents do everything within their means to remove the child’s hearing?
I would love to receive people’s reactions to this. Please fee free to comment below.
Healthfully – DavidSo far, there are a few deaf bloggers who have blogged about this potentially life-changing event.
10 comments:
Some prefer remaining blissfully ignorant. There's nothing much anybody can do for them.
Is it crossing the line when they decide to ask for disability checks?
Who are "they" are you talking about, Klort?
It's a life changing if anything can become successful.
Anyone who happens to be a deaf/hard of hearing/hearing scientist or researcher to work on the stem cells by through the hair cells gets a noble award or Presidential of Freedom medal, no other grassroots such as AFA or organizations can use any petitions to against President of the Noble award or USA.
It's their dream.
Well? Tough luck.
BTW, I understand that CCFDA's desire to use the stem cells and genetic engineering to destroy any of the diseases such as Waardenburg syndrome, Down's syndrome and many more.
Make sense.
White Ghost
Makes no difference what anyone thinks, medical advances will continue regardless,it is when,not if. Even if the USA or UK or europe aadopt legal 'reservations' on research Russia,China and others will ignore and carry on, that leaves us behind in the research game. Once these areas develop what we are trying to prevent, then choice will demand we adopt the advances too, in reality the USA and the UK carry on in secret anyway, one the USA gets choice, those choices with be taken up too.
Mike - when I said "they" - I meant the deaf people. The same people who claim deafness is a culture, not a disability, are also asking for disability or SSI checks.
Isn't it interesting that the AFA submits press releases all over the place, "denouncing" and "condemning" the FDA, the Cord Blood Registry, the Children's Memorial Hospital of Houston and the various investigators of the blood stem cell study?
For "undermining the human rights of their patients and promoting eugenic outcomes"???
Seriously, folks, it is VOLUNTARY
to be involved in such a study. Ppl aren't being arm-twisted.
Deaf culture doesn't own these kids who were once hearing, then deaf. The parents are responsible from day one for their child, whether Deaf culture likes it or not.
This treatment is NON-invasive and NON-donor, unlike cochlear implant surgery or kidney transplantation. Which means less serious complications, less serious side-effects, if any. The stem cells are the baby's own and are injected, rather than surgically removed/implanted. On top of all this, stem cells have the potential to treat other diseases besides deafness. Would you want cerebral palsy or muscular dystrophy for your child if stem cell treatment can cure such disorders? Of course not.
It's one thing to oppose audism, but another to oppose disease research in the name of audism.
'Member that "undermining the human rights of patients and promoting eugenic outcomes"?
Exactly, that's what the AFA is promoting. *scratching my head*
Ann_C
Just came across this blog:
http://repairstemcell.wordpress.com/
I am IMPRESSED... stem cell does diabetes too!
Yes, I've heard (and do read on occasion) of that site for about three years now. In fact, in 2009 they linked to one of my blog site containing a captioned video where I produced the captions myself about stem cells and the reversal of one woman's hearing loss.
http://repairstemcell.wordpress.com/2009/11/19/stem-cells-heal-hearing-loss/
Stem cells, especially adult stem cells, treats a lot of conditions and that list continues to grow. Only a matter of time until hearing loss becomes one of those list of successes.
I posted a comment on the disability advocacy blog asking if the writer of the post that was opposing the petition against stem cell was deaf. They didn't answer and changed their blog settings so one couldn't post anonymously.
Hm. Very fishy that they refuse to answer the question.
And i find it very interesting you linked to non-deaf blogs regarding this subject.
Anony @ 8:42 AM, everybody has something to say. I don't discriminate because a person is hearing or deaf relating a deafness subject. In this case, it's about regenerative medicine and the fact that 34 million people in the U.S. have hearing loss with the majority of them dealing with sensorineural hearing loss. What do you mean you found it interesting that I linked to a non-deaf blog?
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