Showing posts with label babies. Show all posts
Showing posts with label babies. Show all posts

Thursday, June 14, 2012

Cord Blood Stem Cells Treatment for Children

I just couldn't believe it. I read in one discussion forum where one person made a big stink about a current year long study using a deaf baby's own cord blood stem cells to treat the baby's own sensorineural deafness (which has so far appears to continue to help restore the baby's hearing loss) saying it needs to be experimented on animals first to determine the safety of cord blood stem cells. First off, the blood cord stem cells are compatible only to the baby and not in some animal. That sort of ill-conceived logic was enough to make my jaw drop. Secondly, cord blood stem cells are being used to treat a variety of conditions and even injuries such as Traumatic Brain Injury in children in one study which uses the same IV infusion process as with deaf children in a hearing loss treatment Phase I study.
A ground-breaking clinical trial is now underway at The University of Texas Health Science Center at Houston (UTHealth) is an innovative step in a growing number of studies exploring the potential of stem cell-based therapies to help initiate repair and induce healing of damaged brain tissue. The study is being performed in partnership with Children's Memorial Hermann Hospital, UTHealth's major children's teaching hospital.

The trial will involve children who have sustained traumatic brain injuries and who have access to their own umbilical cord blood stem cells, which were banked at birth. Children who meet the trial qualifications will travel to Children's Memorial Hermann Hospital to receive an IV infusion of their cord blood stem cells. They will then be followed at six months, one year and two years.

"The reason we have become interested in cord blood cells is because of the possibility of autologous therapy, meaning using your own cells. And the preclinical models have demonstrated some really fascinating neurological preservation effects to really support these Phase 1 trials," says Charles S. Cox, M.D., Children's Fund Distinguished Professor of Pediatric Surgery and Pediatrics at the UTHealth Medical School, director of the Pediatric Trauma Program at Children's Memorial Hermann Hosptial, and principle investigator of the trial. "There's anecdotal experience in other types of neurological injuries that reassures us in terms of the safety of the approach and there are some anecdotal hints at it being beneficial in certain types of brain injury."

The Phase I safety study will enroll 10 children ages 18 months to 17 years who have suffered moderate to severe traumatic brain injury (TBI) and are within 6 to 18 months of their injury.
People need to understand the potential self-healing (literally) factors of using your own cord blood stem cells. According to The University of Texas Health Science Center at Houston (UTHealth) on cord blood stem cells:
Cord blood is one source of stem cells that has shown promise in preclinical research and is now being explored in experimental treatments for patients with brain injury. In the preclinical or lab setting, research has shown that cord blood stem cells have the ability to divide and change into neural-like cells. Additionally, these stem cells have been shown to migrate to the area of injury, and to secrete therapeutic factors, which may help repair brain damage. Further preliminary findings from studies underway at UTHealth indicate that cord blood stem cells may also alter the body's immune response to injury, by interacting directly with the organs and cells of the immune system that enable the body to better repair itself.
In other words, you could possibly (and literally so) heal thyself using your own cord blood stem cells by enabling your body, in the example of hearing loss in babies, to better repair itself. Especially among babies who gets treated early on and with the help of their own cord blood stem cells, and if it turns out to be successful for the full restoration on hearing, then it becomes a cure. This process would allow deaf babies early on take advantage of the 4 year window of opportunity to take advantage of the active auditory cortex and be able to grow up as a hearing person in every respect.  With this Traumatic Brain Injury study and the Hearing Loss study.  We should know more the results of these studies by next year on whether cord blood stem cells treatment is a success or not.

Tuesday, January 17, 2012

Concerned Citizens for Disability Advocacy on Stem Cells for Deaf Babies

A blog called "Concerned Citizens for Disability Advocacy" (CCFDA) shared an opinion about the recent brouhaha by some Deaf people who are against stem cells experimentation in the field of regenerative medicine that could help babies with hearing loss. This blogger on CCFDA explained why he/she will not support such a petition that is against stem cells treatment for sensorineural hearing loss deaf babies.
After reading everything on this petition site Concerned Citizens For Disability Advocacy Blog will not and does not support this petition nor ever will and here is why.
This valuable Stem Cell Research could potentially help millions in the future. Why would anybody in their right mind want to stop research that could help others in the future unless they have some hidden agenda or selfish motives?
What next are these same people who are pushing this petition going to push for laws to take away these same types of children from their parents who are trying to help them or want to help them so others can be helped in return?
What a sad nation and a society we have become when the gift of helping others is being silenced if you will by this exclusive group pushing this petition.
It truly sickens me to no end.
Another blogger of In the Country of the Deaf, the Hearing Man is Culturally Deprived
had this to say:
A year ago I was reminded of this fact when I was trying to “help” people with hearing conditions and was set straight. Deafness is viewed as much a culture and identity to some as it is viewed a “handicap” to others. You can read the article from last year here: HEARING LOSS – GIFT OR A DISEASE?
I have the utmost respect for the culture and identity of the deaf and only want to “help” those who want to be “helped.” (Unfortunately, even words like “help” have huge implications…it seems almost every word I use is charged with the potential for offense.)
I do have one question which is spinning around in my brain at 2am while my tea grows cold and my back whispers conspiracies to my neck. This is not a challenge but merely an effort to know better and learn:
If the “with hearing” child of parents “with hearing” were to suddenly go deaf, the parents would probably do everything within their means to recover the child’s hearing.
If the deaf child of deaf parents were to suddenly gain audism, would the parents do everything within their means to remove the child’s hearing?
I would love to receive people’s reactions to this. Please fee free to comment below.
Healthfully – David
So far, there are a few deaf bloggers who have blogged about this potentially life-changing event.

Friday, June 27, 2008

Ball and Chain

Photobucket I agree and I support on what Amy Cohen Efron said about the need to exhibit positive examples rather than resort to conspiracy talks, continued negative remarks and darts and daggers aimed at AGBell (and not "AGBAD" which is clearly a barb) whether implied or directly, and the continued bringing up old history rather than to look forward to the future in a positive way. If DBC supporters or followers continue to do these negative types of compaigns via their vlogs or blogs then it will probably be the death of DBC unless somebody make clear to these Deaf people and supporters, who carry way too many baggage, hidden agendas, hiding behind their masks and whatnot need to stop with these personal vendettas and negative but personal campaigns on the sideline

I and many others have seen time and time again these detractors' hidden agendas and masks worn by many of them who pretend to be neutral on cochlear implant issues, AVTs, oral progams, parental rights regarding their deaf/hh babies and such. Their rift is simply too big for them ignore and hide behind their own masks. It’s simply too apparent in a lot of cases. Brian O'Reilly exemplies this fully though, ironically, he's a hearing person who is speaking on behalf of all Deaf people. Until these things are weeded out as early as possible no amount of PRs by DBC will have much an impact since the numerous Deaf vloggers and bloggers will simply overshadow DBC's laudable goals and efforts on positive thinking. Again, Brian O’Reilly’s article in DBC’s own official website was written to attack and demean AGBell and the organization thereby nullifying DBC’s own agenda on moving forward. It cannot if these attitudes persist.

Examples of negative remarks and darts thrown at AGBell seen in "Gearing Up" by Brian O'Reilly (a hearing person speaking on behalf of Deaf people at DBC):

- "Battle of the Conferences” (which implies that DBC is a protest of sort on behalf of Brian O’Reilly’s own writing in DBC’s official website)
- “…merciless references to the great antagonist and arch-villain of the story, Alexander Graham Bell.”
- “ …destroyed lives.. ”
- “ …damage done… ”
- “ …insidious method of preemptive strike… ”
- “Premptive strikes on the social level..”
- “ …force them to try to communicate… ”
- “ …Bellian-Oralist scheme… ”
- “ …still-born plan of the type of mad scientist better relegated to a Mary Shelley novel… ” (note: Mary Shelley wrote the famous novel “Frankenstein”)
- “ …having been fooled.. ”
- “ …silver-tongued embezzler of the mind.. ”
- “ ..mental hijinks lay dormant.. ”
- etc..etc… ad nauseum.

This article (that DBC implicitly supports) probably set back the goals and image of DBC by several years, if not decades, in the effort to get their word out. But with a single stroke of a pen the article, “Gearing up,” single handidly ruined DBC’s first day at the Milwaukee conference. There is nothing worse than to have a stuck mental picture in the public minds, who happens to be mostly hearing parents of deaf/hh children, seeing just how loathsome, angry and disrespectful DBC seems to be. And all because, with thanks, Brian thought it was a cleverly done article replete with negative attacks after negative attacks in an official DBC website?

Nice going.

Isn’t DBC about looking forward and not backward? There are simply too many Deaf people with hidden agendas and heavy baggage that are capable of ruining DBC’s main goal on getting positive information out to parents of deaf/hh babies and children so that they can make an informed decision. Now, Amy Cohen Efron won’t say these things but I will just to make myself a bit pointedly clear on just how obnoxious and damaging "Gearing Up" turned out to be.

Frankly, imho, putting the DBC “conference” right next to AGBell’s already produced one big honking red flag warning people on what’s to come. Good intention aside. Why are people surprised that the skywalk was blocked in the first place? Now, remember, the myths about Deaf people and their “attitudes” are already and firmly in place in most of the public minds and see them as simply “angry” Deaf people (see my points about the UFG protest here and here, and other protests of sorts).

Of course, all it takes is one DBC supporter at the Milwaukee site to cast a negative and angry glance at any of the ABGell’s attendees or a group of them and that alone will simply confirm to them that the DBC conference is nothing more than an opportunity to protest rather than to disseminate useful information in a neutral and positive way. So far, day 1 has been a “failure” on that part. People supportive of DBC need to look to the future and not the past without using accusatory tones and resentments or else DBC’s message and goals will not be heard but overlapped and swept under the rug. Plus, many people continue to be suspicious of DBC leaders’ intentions because the baggage of the past is simply too heavy for many Deaf people to carry and ignore. I and many, many others have seen this time and time again. Transparency gets ugly if people insist on wearing masks. They have turned that baggage into a ball and chain tightly cuffed to their ankles and they are unwilling to let it go.

So, now. What will it be? Look to the future or look to the past and let the ball and chain do the talking?