Reframing Hearing Gain

Back in the days before electronic hearing aids or cochlear implants became effective the term "hearing loss" was used to described a condition caused either by genetics, disease or accident. It is a medical descriptive term just like "vision loss" that accurately describes the condition.

With the leap-frogging advances of hearing technology the concept of "Hearing Gain" takes on a more meaningful interpretation on what was once lost has now gained new sound and opportunities in the hearing world, yet people can still retain their identity as a person with a hearing loss or deaf. The term "Hearing Gain" has nothing to do with on becoming like a hearing person but rather the opportunity it gives and the opening of doors to a different world.

This is true of one deaf woman, Sarah Churman, who made a Hearing Gain when she was given the Envoy implantable hearing device. The device is not a hearing aid since it has no microphone but uses the ear drum as a natural microphone. Sarah experienced a Hearing Gain going from a world of muted and hushed sound that her old hearing aids could not fulfill to a rich, stereo-sound world with the two devices naturally amplifying the natural sound into her eardrums.  This is probably the ultimate form of "Hearing Gain" so far (short of having stem cells restoring hearing loss naturally) that is done on gaining and using natural sound. This cannot be done with hearing aids since sound goes through a microphone and gets digitized and amplified at the end to the ear drum. The same for cochlear implants where sound is converted into digital form before reaching the cochlea in the ear.

If not that then hearing aids or cochlear implants people would give deaf and hard of hearing people their own kind of Hearing Gain experiences where sound and opportunities would open up for them. We saw the strong reaction of Sarah Churman who experienced a life-changing moment with such a new hearing technology it overwhelmed her expectations. Same for cochlear implants.  And even hearing aids. Putting them on and realizing just how much sound they were missing and the connection with the hearing world.

True Hearing Gain would be the time when the restoration of hearing loss could be reversed and restored. In the mean time, Hearing Gain continues apace every day each time a hearing aid, cochlear implant or implantable hearing device gets turned on.

Sarah Churman's book "Powered On" is Number One on Amazon

How impressive. Sarah Churman's book "Powered On" has hit the number one spot on Amazon's best "mover and shaker."

Sarah and I just wanted to shoot out another e-mail saying THANK YOU to all who participated in yesterday's best seller launch on Amazon. By 8pm last night, 'Powered On' earned the best seller title! Sarah's book started out the day ranked #381,773 out of all books on Amazon. She went all the way to spot #361! She got 'best selling biography/memoir' coming in at #64 out of the top 100 best sellers, and eventually earned #1 'mover and shaker' on Amazon books. We are so excited, but more importantly, so grateful for everyone who helped make this happen. We hope everyone who ordered books will enjoy them and return to Amazon to leave a review.

If you want to order Sarah Churman's book, "Powered On", go to Amazon and get one today.

What are the reviews saying in Amazon?

Sarah Churman does an incredible job of taking us into her world of silence along with the challenges of living in a hearing world, bullying, and simple day to day activities that the hearing community takes for granted. She is transparant in sharing her feelings and her journey. It is a beautiful book not just for those effected by deafness but also those facing other serious challenges in life. Thank you Sarah for sharing such a beautiful story.

And that is just one of 29 reviews for a total 5 stars out of 5. Not bad.

Tale of a hypocrisy and Marlee Matlin

News is still reverberating about the latest development on the treatment for hearing loss when gerbils in a laboratory were deliberately made deaf had their hearing loss reversed using human embryonic stem cells.

The stem cells were used to make immature nerve cells. Those were then transplanted into the deaf ears of 18 gerbils.  

Ten weeks later, the rodents' hearing ability had improved by an average of 46 percent, with recovery ranging from modest to almost complete, the researchers reported.

Not totally a cure yet but certainly in that direction that hearing loss or nerve deafness can certainly be reversed.  A key conceptual working model demonstrated here using the medical knowledge and technique that can readily be applied on humans, and that adult stem cells would be used as well.

With that news Marlee Matlin was asked about the medical break through with stem cells.

“Think about this. What if someone told you that you could’ve been made different than the content person you are with genetics. Would you? Now think how millions of deaf people who lead productive lives, would feel when told that babies born deaf can be ‘cured’.”  

Matlin also told followers, “Be proud of who you are, regardless of what people think is a “handicap” or “normal.” Normal is what you want to be. Don’t let anyone tell you who or what you should be.”

The problem here in reference to the yellow highlighted part above is that parents of deaf or hard of hearing babies have the parental and legal right to make an informed decision regarding the use of stem cells to reverse their baby's hearing loss once that procedure becomes safely available. They can either go forward with the treatment or reject it. And odds are quite high that most parents will prefer to opt for the stem cells treatment than to forego it. This would be absolutely true when we have someday stem cells that can reverse blindness or low vision condition would parents opt for that treatment for their blind or low vision babies. Chances are high that culturally deaf parents of a deaf/blind baby would stop at nothing to see that their baby get the stem cells treatment for blindness but not deafness when they value more on vision than hearing. Just as any parents would see any other medical condition would they like to see reversed for their babies. A hypocrisy in action folks. In fact, there wouldn't be any outcry from the culturally deaf community if there was a stem cells treatment that could reverse vision loss in babies, children, teens and adults.

But here's another "hypocrisy" about Marlee Matlin's. She champions for the donation of free hearing aids to deaf and hard of children around the world with the Starkey Hearing Foundation. I think this is great! In fact she regularly attends this annual gala event called, "So the world may hear." This year's gala 2012 event raised a record $7.6 million dollars and had many notable celebrities like:

President Bill Clinton, Maria Bello, Robin Williams, Marlee Matlin, Billy Crystal, Forest Whitaker and Sammy Sosa attended this year's Awards Gala, which raised a record $7.6M. But the biggest star was the power of hearing.

And yet she warns us about stem cells treatment for hearing loss? What's her stance on stem cells treatment for curing blindness or low vision in babies?

The power of hearing. Yes, that's a strong draw and reason for people to support on finding ways to alleviate hearing loss. Even Lou Ferrigno (who received his Esteem Envoy implantable hearing aid) and Gary Busey (Marlee Matlin confronted Busey his hearing loss that he needs to get a hearing aid seen in the Celebrity Apprentice show by which $1 million dollar was raised for Starkey Hearing Foundation) who were at the gala event as well. It won't be long until celebrities support for the cure for hearing loss through stem cells treatment.

Now, here's the irony.

Marlee Matlin is perhaps unwittingly helping people understand and value the power of hearing for several years by attending the "So the World May Hear" gala annual event that began in 1984 and supports the distribution of free hearing aids to children around the world. Deaf and hard of hearing children around the world with their free hearing aids are getting a taste of that power of hearing and experience the joy of being able to hear sound.  And with that taste in mind already experienced they certainly would want to opt for stem cells treatment to reverse their own hearing loss if they had that choice and the means to do so.

Now, I'm sure some in the culturally deaf community would express their shock and outrage over this but let me remind some of the culturally deaf people that the bulk of their community do wear hearing aids and cochlear implants. Look around whenever you are with a group of deaf and hard of hearing friends. How many of them are wearing hearing aids and cochlear implants? Why are they wearing hearing aids? Why cochlear implants? What makes you think they would not want to opt for stem cells treatment to reverse or simply improve their own hearing?  What makes you think they would not support parental rights to make an informed decision to provide stem cells treatment to reverse hearing loss for their deaf/hh babies?

So, who is really showing the hypocrisy here?

Is the death of culturally deaf community that far behind? Or is it just plain paranoia? 

Sarah Churman's new book....Powered On

Remember Sarah Churman with almost 14 million hits to date on YouTube? Yeah, you remember her (and all the hate or lamentations that followed like here,  here, here, here, here, ....ad nauseum) and the Esteem Envoy implantable hearing aid that was turned on for the first time and it turned Sarah Churman into an overnight internet sensation. That sensation is still continuing almost a year later with the ongoing media coverage.  Anyways, she has a new book coming out in October. The book is called "Powered On."  The title certainly does make sense. And if you pre-order now you can save a few bucks before her book comes out officially in October. I already ordered mine! And I'll let you know when I'm done reading it. I'm sure it's much better than buying a blank book under false advertisement and pretenses (oh, I never bought it, fyi) but I still reserve that the Steve Jobs book I got would be the better one to read and enjoy. We'll see. Get yours today!

Lou Ferrigno gets Envoy Esteem hearing implant

I was watching the last episode of Celebrity Apprentice when Lou Ferrigno announced during the live show that he can now hear better with his new Esteem implantable hearing device.

Lou Ferrigno, the actor who played the Hulk on the 1970s TV show "The Incredible Hulk," has begun using an implantable hearing aid from Minnesota's Envoy Medical Corp. Ferrigno, who's had hearing problems since he was young, said last weekend on the finale of Celebrity Apprentice (he was fired in April) that he received the Esteem medical implant, made by White Bear Lake-based Envoy.

In fact, this was successfully kept underwraps until Medical Envoy released a press release yesterday, the day after the show that was aired on Sunday, about Lou and his new implant and successful it was that Lou even cried once it was activated.

Profoundly hard of hearing since two years old, Lou Ferrigno revealed last night on The Celebrity Apprentice that he recently underwent a surgical procedure to restore his hearing, with the Esteem® Device, manufactured by Envoy Medical Corporation. The device is a fully implantable prosthetic cochlea stimulator, designed to do just that. It has no microphones or speakers. It is invisible. Except that Lou knows it was implanted, he has no sense of it being in his body. But he can hear. And according to Lou Ferrigno, it "is a miracle." "Lou's dream has always been to hear like everyone else," said Carla, his wife of 32 years, who encouraged Lou to have the procedure. Now, Lou says he has "natural hearing and can hear things he has never heard before or could have ever hoped to hear." Birds chirping, rain on his roof, his alarm clock in the morning (scares the heck out of him, he says laughing) the tiniest sounds of his fingers moving together, the refrigerator's quiet motor, but most importantly, the ability to hear people in everyday conversation, even in a noisy environment, like a restaurant. "Everything is so loud and so clear," says the actor, who is still trying to figure out certain, never before heard sounds. Ferrigno said he "can't wait to get his second ear done,"

The device was implanted by Dr. Michael Murray of San Jose CA, who has performed hundreds of Esteem® procedures and is booked through September. Lou Ferrigno's surgery was performed in Houston, Texas at Envoy Medical's private ("decadent," according to Murray) surgical center. The entire procedure costs approximately $37,000 for the device and the surgery, and according to Ferrigno, "is worth a lot more." Approved in a 15 to 0 unanimous, independent panel vote by the FDA, the Esteem® is indicated for moderate to severe hearing loss, in people with sensorineural hearing loss (about 85% of all hearing loss sufferers). It replaces conventional hearing aids for those who qualify. The Esteem® Device is also approved by the VA (Veterans Administration) for those who qualify and have it prescribed by their VA audiologist and ENT specialist.

The device works by leveraging the natural anatomy of a person's own body. Sound enters the ear naturally. The natural vibrations of the eardrum are sensed and sent to a microprocessor implanted under the skin behind the ear. The vibrations are intensified and sent to the cochlea via the stapes. The tiny remaining hair cells in the cochlea pick up the vibrations and send them to the brain where they are interpreted as sound. The result, according to the successful recipients, including Lou Ferrigno, is beyond anything a hearing aid can offer. Ferrigno is still amazed at how well it works. "No more hearing aids for me," Lou Ferrigno exclaims with a huge smile on his face. Tears fell from his eyes upon activation. Ferrigno, dumbfounded, said "he was advised by his audiologist not to have the procedure." "Go Figure?" said Ferrigno. Lou said he "hasn't felt this good since he won the Mr. Universe competition."

This is great for Lou. I'm sure he's happy with it as you can see.....just like Sarah Churman.

Hard of hearing person interviews Sarah Churman

Here's an interesting captioned video interview of Sarah Churman by DJ Demers of Sharp Focus. What makes this an interesting interview is that you have two hard of hearing people talking back and forth on a live video feed with DJ Demers out of Toronto, Canada and Sarah Churman out of Burleson, Texas. They're able to understand each other quite perfectly. The only difference between the two is that DJ Demers wears regular hearing aids in both ears while Sarah wears her Envoy implantable hearing aid in one (but soon to have her other implantable hearing aid that was donated to her for free by Envoy Medical will be activated in March).

D.J. DEMERS is a funny dude who wears hearing aids, but he doesn’t talk about them much.

He was recently nominated for a Canadian Comedy Award for best standup newcomer and was also a finalist in the prestigious Cream of Comedy competition. All this despite his hearing impairment. He also showcased for NBC at the Comedy Store in L.A. for their Stand-Up for Diversity initiative. What makes him diverse? Possibly his hearing aids.

D.J. has appeared in two episodes of the extremely intellectual show, ‘Cocktales’, on the Comedy Network. He has been profiled by the Toronto Star and ‘The Morning Show’ on Global. His videos have been featured in Eye Weekly and Bite.ca, and he has written for the Walrus Laughs and Virgin Mobile Canada. Most of the content had nothing to do with hearing aids.

These days, D.J. hosts and produces a monthly comedy show with Chuckle Co. at the Comedy Bar in Toronto. He is also the host of ‘Sharp Focus with D.J. Demers’ on The Accessible Channel. With his mixture of intelligence, playfulness, and not being able to hear-ness, D.J. is always a crowd favourite.

He also wears hearing aids.

Interesting! Be sure to visit DJ Demers in Facebook and support your hard of hearing comedians! But, hey, I did some stand up comedy before. And it wasn't easy but I sure did have some fun doing it. And ya gotta have a passion for doing it if you want to make something out of it. Although I do have a creative side in me like doing my Uncle Bob's House - a Pepsi parody video (you gotta watch the original Pepsi commercial to understand my parody video).



Ahem, anyway, the video interview of Sarah Churman is already captioned so be sure to turn on the CC button on YouTube if you need captioning. Thank you Sharp Focus for including captioning! The 36 million people with hearing loss in the United States thank you! I maintain my own standard to include captioning to my own videos at every opportunity.

Sarah Churman gets 2nd hearing aid implant

It won't be long until Sarah gets to hear the world in stereo instead of mono. Very cool. She underwent surgery on January 13, 2012 for her 2nd implantable hearing aid and will have her implant activated on March 8, 2012. All this was possible because of  Envoy Medical's generous donation presented by Ellen DeGeneres on her show that helped pay for the cost of Sarah's first surgery and gave her a 2nd implant, including the cost of surgery, for free.



Will her response to her 2nd activation be as dramatic as her first one? I'm sure she will be followed a lot more closely with news cameras around her come activation day. I mentioned in my blog about her first activation that was captured on YouTube that became an instant viral video of the year with nearly 10 million visits to date. People continue to learn about the new surgical implant even though she was all the rage in the news late last year. More people will certainly learn about the Envoy implantable once she gets it activated on March 8.

Good luck, Sarah! Couldn't happen to a better person.

Sarah Churman's audiogram

I said previously that in time we'll know more about Sarah's hearing loss and that people need to keep an open mind about her and the YouTube video that went viral with more than 7.9 million views. That helped produce a 150 percent jump in sales inquiries for the hearing aide company Envoy Medical with more to come for Envoy Medical and Sarah Churman as well (note the bold).

Sixteen days ago 29-year-old Sarah Churman posted a video of herself hearing her voice loud and clear for the first time after being implanted with Envoy Medical’s Esteem device. The video went viral, sales have spiked and Churman and Envoy have shared the spotlight on The Today Show, Ellen DeGeneres, Fox and Friends, and CNN’s Anderson Cooper and Dr. Sanjay Gupta, among others. The story was also covered on 150 local television stations, and the media attention keeps coming: MSNBC will be doing a story at Churman’s house.

Envoy already spends around $8 million to $10 million a year on radio advertising with announcers including Rush Limbaugh, Glenn Beck, Sean Hannity, Laura Ingraham and Michael Savage. Company CEO Patrick Spearman said as a result of the video big-name celebrities have approached Envoy about getting the device. Spearman thinks that development could lead to television appearances as well as television advertising.

In short, it was a good deal for Envoy Medical to help re-imburse Sarah the $30,000 she spent on the hearing aid implant and will cover for free for Sarah's second implant for her other ear. The viral video was after all basically free advertising for the company's product.

A few days ago Sarah answered a few questions of her own in her own blog. Today, more questions were answered regarding the many complaints saying the whole video was fixed, for example.

In addition to an increase in media exposure and sales, the video also led to a lot of skepticism. Critical anonymous online commenters accused Envoy of creating the video as a marketing strategy. Envoy has posted around 20 to 25 similar videos themselves in the past, though none of them had the same impact as Churman’s.

Did Envoy have something to do with it?

“Absolutely not,” Spearman said. “It was a surprise to us.”

Churman’s husband posted it to YouTube “thinking his family and friends would watch it and people were so touched by it that all of a sudden it went viral,” Spearman said.

Envoy Medical has since given Churman a free device for her other ear.

“It’s basically a reimbursement for her time,” Spearman said, pointing out that she’s been flying all over the country for television appearances.

That's what I said, too, about how the video was meant for her family and didn't expect it to go viral.

And then you have the doubts that Sarah could not be deaf (well, she is, so get over it) only because she speaks so clearly or how she could hear her own voice for the first time because, darn it, it's an impossibility!

“The definition of deaf is somewhat of a range,” Spearman said. “If you have a severe hearing loss, you’re considered deaf, anything over a 70 decibel loss.

“The skepticism, you’re always going to have people who are skeptical but the reason is because she said I heard my voice for the first time. Well, what she heard was her real voice, the same way you and I hear our own voice. She could hear something [before]. Not a lot, and not very well, but she could hear tones and sounds or she wouldn’t be able to speak. And that’s where this came from, people saying, ‘Well, she’s not deaf.’

“Well, it’s just a matter of semantics and how you define deaf, but she basically has a severe hearing loss because I’ve obviously seen her audiogram. She had a 70 to 75 decibel loss at 1500 to 2000 hertz, and that’s a severe hearing loss.”

Not the full detail of her audiogram but I'm happy with it though I didn't feel the need to question her so harshly or unnecessarily.

There you have it folks. Pretty much all in a nutshell with most questions answered. She's deaf. She can speak really well.  The viral video isn't a fake and was never a ploy set up by Envoy Medical. And she can finally hear very well with the help of her new implantable hearing aid.

Time for people to move on and stop speculating and nitpicking, and be happy for Sarah just for once. Welcome her with open arms.