Reframing Hearing Gain

Back in the days before electronic hearing aids or cochlear implants became effective the term "hearing loss" was used to described a condition caused either by genetics, disease or accident. It is a medical descriptive term just like "vision loss" that accurately describes the condition.

With the leap-frogging advances of hearing technology the concept of "Hearing Gain" takes on a more meaningful interpretation on what was once lost has now gained new sound and opportunities in the hearing world, yet people can still retain their identity as a person with a hearing loss or deaf. The term "Hearing Gain" has nothing to do with on becoming like a hearing person but rather the opportunity it gives and the opening of doors to a different world.

This is true of one deaf woman, Sarah Churman, who made a Hearing Gain when she was given the Envoy implantable hearing device. The device is not a hearing aid since it has no microphone but uses the ear drum as a natural microphone. Sarah experienced a Hearing Gain going from a world of muted and hushed sound that her old hearing aids could not fulfill to a rich, stereo-sound world with the two devices naturally amplifying the natural sound into her eardrums.  This is probably the ultimate form of "Hearing Gain" so far (short of having stem cells restoring hearing loss naturally) that is done on gaining and using natural sound. This cannot be done with hearing aids since sound goes through a microphone and gets digitized and amplified at the end to the ear drum. The same for cochlear implants where sound is converted into digital form before reaching the cochlea in the ear.

If not that then hearing aids or cochlear implants people would give deaf and hard of hearing people their own kind of Hearing Gain experiences where sound and opportunities would open up for them. We saw the strong reaction of Sarah Churman who experienced a life-changing moment with such a new hearing technology it overwhelmed her expectations. Same for cochlear implants.  And even hearing aids. Putting them on and realizing just how much sound they were missing and the connection with the hearing world.

True Hearing Gain would be the time when the restoration of hearing loss could be reversed and restored. In the mean time, Hearing Gain continues apace every day each time a hearing aid, cochlear implant or implantable hearing device gets turned on.

Sarah Churman's new book....Powered On

Remember Sarah Churman with almost 14 million hits to date on YouTube? Yeah, you remember her (and all the hate or lamentations that followed like here,  here, here, here, here, ....ad nauseum) and the Esteem Envoy implantable hearing aid that was turned on for the first time and it turned Sarah Churman into an overnight internet sensation. That sensation is still continuing almost a year later with the ongoing media coverage.  Anyways, she has a new book coming out in October. The book is called "Powered On."  The title certainly does make sense. And if you pre-order now you can save a few bucks before her book comes out officially in October. I already ordered mine! And I'll let you know when I'm done reading it. I'm sure it's much better than buying a blank book under false advertisement and pretenses (oh, I never bought it, fyi) but I still reserve that the Steve Jobs book I got would be the better one to read and enjoy. We'll see. Get yours today!

Hard of hearing person interviews Sarah Churman

Here's an interesting captioned video interview of Sarah Churman by DJ Demers of Sharp Focus. What makes this an interesting interview is that you have two hard of hearing people talking back and forth on a live video feed with DJ Demers out of Toronto, Canada and Sarah Churman out of Burleson, Texas. They're able to understand each other quite perfectly. The only difference between the two is that DJ Demers wears regular hearing aids in both ears while Sarah wears her Envoy implantable hearing aid in one (but soon to have her other implantable hearing aid that was donated to her for free by Envoy Medical will be activated in March).

D.J. DEMERS is a funny dude who wears hearing aids, but he doesn’t talk about them much.

He was recently nominated for a Canadian Comedy Award for best standup newcomer and was also a finalist in the prestigious Cream of Comedy competition. All this despite his hearing impairment. He also showcased for NBC at the Comedy Store in L.A. for their Stand-Up for Diversity initiative. What makes him diverse? Possibly his hearing aids.

D.J. has appeared in two episodes of the extremely intellectual show, ‘Cocktales’, on the Comedy Network. He has been profiled by the Toronto Star and ‘The Morning Show’ on Global. His videos have been featured in Eye Weekly and Bite.ca, and he has written for the Walrus Laughs and Virgin Mobile Canada. Most of the content had nothing to do with hearing aids.

These days, D.J. hosts and produces a monthly comedy show with Chuckle Co. at the Comedy Bar in Toronto. He is also the host of ‘Sharp Focus with D.J. Demers’ on The Accessible Channel. With his mixture of intelligence, playfulness, and not being able to hear-ness, D.J. is always a crowd favourite.

He also wears hearing aids.

Interesting! Be sure to visit DJ Demers in Facebook and support your hard of hearing comedians! But, hey, I did some stand up comedy before. And it wasn't easy but I sure did have some fun doing it. And ya gotta have a passion for doing it if you want to make something out of it. Although I do have a creative side in me like doing my Uncle Bob's House - a Pepsi parody video (you gotta watch the original Pepsi commercial to understand my parody video).



Ahem, anyway, the video interview of Sarah Churman is already captioned so be sure to turn on the CC button on YouTube if you need captioning. Thank you Sharp Focus for including captioning! The 36 million people with hearing loss in the United States thank you! I maintain my own standard to include captioning to my own videos at every opportunity.

Sarah Churman gets 2nd hearing aid implant

It won't be long until Sarah gets to hear the world in stereo instead of mono. Very cool. She underwent surgery on January 13, 2012 for her 2nd implantable hearing aid and will have her implant activated on March 8, 2012. All this was possible because of  Envoy Medical's generous donation presented by Ellen DeGeneres on her show that helped pay for the cost of Sarah's first surgery and gave her a 2nd implant, including the cost of surgery, for free.



Will her response to her 2nd activation be as dramatic as her first one? I'm sure she will be followed a lot more closely with news cameras around her come activation day. I mentioned in my blog about her first activation that was captured on YouTube that became an instant viral video of the year with nearly 10 million visits to date. People continue to learn about the new surgical implant even though she was all the rage in the news late last year. More people will certainly learn about the Envoy implantable once she gets it activated on March 8.

Good luck, Sarah! Couldn't happen to a better person.

Sarah Churman's audiogram

I said previously that in time we'll know more about Sarah's hearing loss and that people need to keep an open mind about her and the YouTube video that went viral with more than 7.9 million views. That helped produce a 150 percent jump in sales inquiries for the hearing aide company Envoy Medical with more to come for Envoy Medical and Sarah Churman as well (note the bold).

Sixteen days ago 29-year-old Sarah Churman posted a video of herself hearing her voice loud and clear for the first time after being implanted with Envoy Medical’s Esteem device. The video went viral, sales have spiked and Churman and Envoy have shared the spotlight on The Today Show, Ellen DeGeneres, Fox and Friends, and CNN’s Anderson Cooper and Dr. Sanjay Gupta, among others. The story was also covered on 150 local television stations, and the media attention keeps coming: MSNBC will be doing a story at Churman’s house.

Envoy already spends around $8 million to $10 million a year on radio advertising with announcers including Rush Limbaugh, Glenn Beck, Sean Hannity, Laura Ingraham and Michael Savage. Company CEO Patrick Spearman said as a result of the video big-name celebrities have approached Envoy about getting the device. Spearman thinks that development could lead to television appearances as well as television advertising.

In short, it was a good deal for Envoy Medical to help re-imburse Sarah the $30,000 she spent on the hearing aid implant and will cover for free for Sarah's second implant for her other ear. The viral video was after all basically free advertising for the company's product.

A few days ago Sarah answered a few questions of her own in her own blog. Today, more questions were answered regarding the many complaints saying the whole video was fixed, for example.

In addition to an increase in media exposure and sales, the video also led to a lot of skepticism. Critical anonymous online commenters accused Envoy of creating the video as a marketing strategy. Envoy has posted around 20 to 25 similar videos themselves in the past, though none of them had the same impact as Churman’s.

Did Envoy have something to do with it?

“Absolutely not,” Spearman said. “It was a surprise to us.”

Churman’s husband posted it to YouTube “thinking his family and friends would watch it and people were so touched by it that all of a sudden it went viral,” Spearman said.

Envoy Medical has since given Churman a free device for her other ear.

“It’s basically a reimbursement for her time,” Spearman said, pointing out that she’s been flying all over the country for television appearances.

That's what I said, too, about how the video was meant for her family and didn't expect it to go viral.

And then you have the doubts that Sarah could not be deaf (well, she is, so get over it) only because she speaks so clearly or how she could hear her own voice for the first time because, darn it, it's an impossibility!

“The definition of deaf is somewhat of a range,” Spearman said. “If you have a severe hearing loss, you’re considered deaf, anything over a 70 decibel loss.

“The skepticism, you’re always going to have people who are skeptical but the reason is because she said I heard my voice for the first time. Well, what she heard was her real voice, the same way you and I hear our own voice. She could hear something [before]. Not a lot, and not very well, but she could hear tones and sounds or she wouldn’t be able to speak. And that’s where this came from, people saying, ‘Well, she’s not deaf.’

“Well, it’s just a matter of semantics and how you define deaf, but she basically has a severe hearing loss because I’ve obviously seen her audiogram. She had a 70 to 75 decibel loss at 1500 to 2000 hertz, and that’s a severe hearing loss.”

Not the full detail of her audiogram but I'm happy with it though I didn't feel the need to question her so harshly or unnecessarily.

There you have it folks. Pretty much all in a nutshell with most questions answered. She's deaf. She can speak really well.  The viral video isn't a fake and was never a ploy set up by Envoy Medical. And she can finally hear very well with the help of her new implantable hearing aid.

Time for people to move on and stop speculating and nitpicking, and be happy for Sarah just for once. Welcome her with open arms.

Sarah Churman responds to questions....

It was a matter of time until Sarah found the time to answer some questions pertaining to her ability to speak clearly and how she hears before and after getting her implantable hearing aid. It is really astounding to read comments from people saying how it's an impossibility for one to develop a clear voice with no deaf accent. Here's Sarah Churman's money shot on one of the  most asked question,"How do you know how to talk?":

Anyway, everyone is different. Everyone heals differently, everyone learns differently, and everyone excels at different things. I personally have always LOVED to read and write. English and Grammar have always been something I have enjoyed. I also enjoy talking! (Big shocker to those who know me huh? NOT! Lol.) I have worked very hard to overcome and to speak well. I went to deaf ed school when I was very young, then on to public school where I took speech classes and therapy. I don't think people realize how intently I read lips. When you read lips, you are studying how people move their mouths, where they place their tongue (and for those of you with tongue rings, yes, you trip me up) and their teeth. It's a skill I have had 29 years to hone.

Next question: "How did she know what the doc was saying without looking at her mouth?"

Um. I got my ear turned on :) How do YOU know what people are saying? You HEAR them. I don't mean to be rude, but really? I don't know, I can't explain the brain or how it works. I just know my ear works and I heard her clear as a bell. (which was awesome) I've always been able to hear some noise if it was loud enough with my hearing aids, just not able to make a distinction as to what people were actually saying. If you covered your mouth, I couldn't read your lips. The best way I know to explain it is like this.; if you went to a foreign country and someone spoke to you, you'd know they were talking because you can hear something, but you have no idea what they are actually saying. Hope that helps.

With hearing aids, noise distortion is always an issue which is why sometimes hearing people talk can get muddled. Sounds are electronically amplified but gets distorted. But with the Esteem implantable hearing aid this distortion gets eliminated because it uses the ear's "eardrum as a natural microphone, picking up sounds through the ear canal, thereby using the body’s natural anatomy to reduce the background noise, distortion, and acoustic feedback that people experience with conventional hearing aids."

It's pretty galling to see people dismiss the very notion that deaf people cannot have the ability to speak clearly. I don't think the motto "deaf/hh people can do anything except hear" precludes the ability to speak clearly. Some require more intense speech therapy and training while others not so much. It all depends on amount of hearing loss, types of frequency loss, early intervention, amount of speech therapy and probably the most important of all is the love to talk constantly and not be afraid to find ways to improve speech diction. Although I believe that we can have the ability to hear just not close to the level of a hearing person but that Esteem implantable hearing aid sure comes pretty close.

The Sarah Churman Saga Continues.....

Since I am unable to contribute on Deaf Echo (for their petty reasons that's seven months old) and respond to comments over there I will do so here on my blog regarding what Mishkazena said:

"i'm glad for sarah churman. i wish her the best of luck. however, the title 'hearing her voice for the first time' is misleading. many people deny this, insisting one can develop a clear voice with no deaf accent without hearing one's voice in the past. it's an impossibility. yet our experiences and knowledge are dismissed. we're ridiculed and painted an anti implant group by the adoring and awe-struck hearing audience. this had been reinforced by several deaf people with a chip on their shoulders against culturally deaf people taking this as yet another opportunity to attack these deaf people."

I think it all boils down to the missing context of that YouTube title which says, "29 years old and hearing myself for the 1st time!" which could have been meant to say "29 years old and hearing myself clearly and loudly for the first time."  We don't know who put that title in but it was Sarah's husband who videotaped her. It was her husband who put that video on YouTube which means it was probably most likely her husband who wrote down that title.  But what we don't know is that there could be some truth to that title that Sarah was hearing her own voice for the first time. Unless you have her audiogram and a complete picture of her history, I suggest people withhold judgement until it becomes clear on Sarah's hearing loss.

Having said that, people with high frequency hearing loss can and do have a harder time hearing one's own voice, especially if the person is a female such as in probably the case for Sarah Churman. I don't know. Instead of saying it's an impossibility that she could speak so clearly and say she's deaf consider the option of keeping an open mind. Sarah already explained to Ellen DeGeneres that she cannot explain completely why she can speak so well and gets asked with that question all the time. She told Ellen that she accredited her good speech to deaf ed, speech therapy and her love to talk alot. But somehow people seem to try and paint her as a liar and not telling the truth. 

Next we have Dianrez's blog who continues to misunderstand and even twist on what I've said in the past.

People who have even a slight amount of hearing at some point, or who were born with hearing, are able to make the most of it in many cases and these are the ones most helped by hearing aids or later cochlear implants or the new implantable middle-ear device. Those with excellent auditory memory do the best of all. That the media and some bloggers continue to categorize them as "deaf" is misleading: these people are not, NOT deaf.

There are so many different types of hearing LOSS. I used this word deliberately. They are people with auditory memory going way back, even unconsciously; they have brain pathways in the speech range that worked at one time, and may still work. Then they "suffered" a LOSS. The memory traces are still there, however.

Hard of hearing people have this, too. McConnell, himself hard-of-hearing, acknowledges that there are different types of hearing LOSS, but he makes the mistake of lumping profoundly deaf people into this group. These are people without any auditory memory from birth, and even with early cochlear implants, may not always develop useful hearing as Heuer points out in his article.

A few profoundly deaf people have cochlear implants and are said to be living as hearing people, such as the Chaikof sisters of Cochlearimplantonline.com. Many, as all of us personally know, do not hear as well and as many stash them in drawers as those that use them. (Heuer)

I discussed in my blogs on the key to early intervention in conjunction with using current hearing technology to make it work, even for those who are profoundly deaf using cochlear implant, and make use of the auditory cortex during those crucial 4 years window of opportunity. I made my point about early intervention numerous times in my blogs, especially on cochlear implants, such as here, here, here, here, here, here, here, here, here, here and many more going back a few years in my blog. The phrase "hard of hearing" does not pertain to db loss nowadays simply because of the advent of cochlear implant technology.  It's the ability to discriminate words, understand environmental sounds and speak intelligibly with the help of current hearing technology along with audio and speech therapies. Cochlear implants make it possible nowadays for those born profoundly deaf get implanted at such a young age and develop the ability to discriminate the spoken words (without looking) and be able to speak extremely well. The key has always been early intervention (rather than "auditory memory") using the existing hearing technology with lots of supports and encouragements. Not every instances are a success for various reasons but successes there are. In fact, Dianrez's own suggestion at the end of her blog supports my argument about profoundly deaf people can be put into the category of "hard of hearing":

Deaf: having little usable hearing for speech. Having little usable hearing for environmental sounds. Having little usable hearing even with devices.

You have profoundly deaf people who were born profoundly deaf whose hearing (what's left of it) is considered still usable only because of the existence of cochlear implant makes it possible to bridge that gap. Young deaf children have usable hearing for listening and speech development if cochlear implant is considered. It still usable hearing when it comes to environmental sounds. In a word, that would fit the definition of hard of hearing for prelingually (profoundly) deaf people who end up benefitting greatly from cochlear implants. Not all would fit into the category as hard of hearing people but many do. Even Jamie Berke of About.com Deafness admitted how the cochlear implant technology changed the meaning of the term "hard of hearing" for profoundly deaf people.

What is the difference between being hard of hearing and being deaf? The answer is not simple, and is getting even harder to define with the growth of cochlear implants.

You have cochlear implant wearers who consider themselves as deaf and hard of hearing just like you have hearing aid users who consider themselves as deaf and hard of hearing, just like me. Turn the device off, you're deaf. Turn it on, you're hard of hearing. Just like Sage in this captioned video below when she was 16 years old who was outfitted with a cochlear implant at age 22 months speaks about her cochlear implant.



There's no doubt that Sage is hard of hearing but then again she's deaf, too.

As for the Chaikof sisters (Rachel Chaikof that runs her own website Cochlear Implant Online) they never made the claims of living as "hearing people" but rather they have the ability to interact and associate with hearing people solely because of the early intervention with cochlear implant and speech therapies made it possible today to interact. Just as I can interact easily with hearing people but I'm certainly not a hearing person. They know they are deaf but see themselves as hard of hearing. Let's not twist words, Dianrez.

Another twist by Dianrez about what I said.

Then we have people who defend the people who are involved in the quest to hear again. Mike McConnell is one. Immediately he jumps on people who point out the flaws in such cures by way of electronic and mechanical devices: "Why is it so hard to congratulate a grown deaf adult seeing the immediate (and emotional) success from her implantable hearing aid in a video?" He has written several consecutive blogs, each insisting that Sarah is deaf four different ways and is still deaf when she turns off the implant. He adds, "Those people need to take their brains out of the gutter and stop with the stereotyping of what deaf people can or cannot do, especially on the ability to speak well. This is especially true coming from deaf people themselves which serves only an ironic and hypocritical reminder. Yet people continue with this conspiracy theory thinking something's afoot. Practically insinuating that she is not deaf because there is no way she can speak that well. No way!! Well, get over it folks, she is deaf."

I've not described nor insisted that Sarah is deaf in four different ways. Please stop with the disingenuous hyperbole and dishonesty, Dianez. I've already explained in the above about the terms "deaf" and "hard of hearing." Secondly, my comment asking why is it so hard to congratulate Sarah Churman's implantable hearing aid success was taken out of a paragraph I wrote while leaving the rest behind that explains my questioning which had nothing to do with about jumping on "people who point out flaws in such cures" (because implantable hearing aids are not a cure). Rather my comment had to do with people lamenting about one's own history struggling with his/her hearing aid wishing his/her story was video-taped and had gone viral, too. Instead of being happy for her you hear lamentations, the whole nine-yards "woe-is-me."

Captioned Video: The Doubters of Sarah Churman

Remember the phrase people, deaf people can do anything...even speak really, really well just like Sarah Churman. Even hear pretty good, too! But we still have a hearing loss at the end of the day when we turn off our hearing aids or cochlear implant.

Rush Limbaugh and Sarah Churman

I predicted this would happen a few days ago that Rush Limbaugh would discuss about the YouTube viral sensation of Sarah Churman and the Esteem implantable hearing aid remarkable result and impact on her and to the rest of the viewers. I heard Rush discussed the whole thing over my radio this morning. And his transcript can now be seen on his website.

The video of it on YouTube has gone viral. Millions of people are watching it. They got one thing wrong. She was not deaf. For the Esteem to work, you have to have some hearing. If you're a hundred percent deaf it won't work because it restores your natural hearing using your own eardrum. It's a prosthetic hearing implant, just became available last year, totally invisible. If you were to meet her today you would not see it. The Esteem works with her natural hearing to restore it to near optimum levels. The video I mentioned, you can actually see Sarah, the minute the Esteem is turned on she can hear herself laugh for the first time. She can hear her own voice clearly for the first time. She's so overwhelmed by all of this, something that we all take for granted, that she starts to cry.


Now, the video's only a minute and a half long, but it's a couple-Kleenex video. She's crying and laughing so hard, she goes through several tissues. Her husband, Sloan Churman, videotaped the moment for her, and he posts it for family and friends to see that could not be with her in the doctor's office when they turned the thing on. So one person tells another, the video starts to go viral and a week later six and a half million people have seen it or there have been six and a half million views of the video and what made it all possible was the Esteem from Envoy Medical. Now, you can see the video on YouTube, and we're gonna post it at RushLimbaugh.com, too. You can see the Esteem at EnvoyMedical.com, or call them, 800-518-7320.


But you should see this video. The moment it's turned on for the first time in her life she can hear, and it's an amazing thing. If you've never lost your hearing you have no clue what it's like and it's just an amazing thing to see, and it's a fabulous product, and when I saw the video, I said, "That's it! That's the Esteem, that's our client, that's our sponsor." I was proud as I could be, as we only associate with the best.

One thing Rush got wrong was that, yes, Sarah was born deaf. Maybe Rush was thinking in the context as stone deaf but yes, she's deaf and even hard of hearing, too. And now, she's easily hard of hearing to the point when people would automatically assume her to be hearing the way she would speak so clearly.

Congratulations, Sarah!

When haters gonna still hate....and the clueless ones continue to be clueless...

Amazing and touching video of a young woman turning on her implantable Esteem hearing aid for the first time. This YouTube video has gone viral with 4.8 million views and counting with over 20,000 comments along with over 49,000 likes and over 700 dislikes. Good thing the majority knows better and knows what a good thing looks like. Kudos to Sarah Churman for a successful implant but then the sad thing is that you'll get your usual haters in the comment section as always by a bunch of idiots who don't know any better. And then you have a bunch of ignorant people who can't even understand that deaf/hh people can speak just fine. And if you look further you might find a few gems.You'll have to spend some time to find and read those comments including the Today show. And, of course, you gotta go to this forum with the discussion on whether the video is a fake or not. 

Being ignorant is not an excuse.

Next, I bet with this viral video it will push a 2nd wave of interest from people wanting to know more about the Esteem implantable hearing aid and perhaps get even more investors for the makers of Esteem. Last year Rush Limbaugh helped advertise the Esteem hearing aid and saw a huge wave of interest in this new albeit very expensive hearing technology.

Thanks in large part to Limbaugh's plug on his radio show, White Bear Lake, Minn.-based Envoy recently raised another $16.4 million, including $10 million from hearing aid powerhouse Starkey Laboratories Inc., for its Esteem implantable hearing device.

Nice of Starkey Laboratories to donate $10 million dollars to Envoy as a worthy cause.

And lastly, as I mull this thought, I wonder what are the odds that Limbaugh will read about this YouTube viral on his radio show? I'd say it'd be pretty good odds over the next few days or so for that to happen.

UPDATE: For the naysayers, haters and doubters:

The Texan woman had been wearing hearing aids from the age of two, but had mainly relied on lip-reading, because 'hearing aids only help so much'.

Supportive messages have poured in from viewers, including one who wrote: 'This is one of the most beautiful and moving things I've witnessed. We're all so happy for you.'

Mrs Churman replied on YouTube: 'Thank you for all the positive comments... thanks for all the people who are kind.'

In response to viewers who were amazed at her ability to speak clearly, the formerly deaf woman said: 'My whole life I've been complimented on how well I speak.

'I don't really have an answer for you other than I have always had a passion for reading, grammar, and English.

'My hearing loss was/is considered severe to profound. I've worked very hard to be able to interact and blend in... only thing I can say is 'God is good'.'