Showing posts with label hearing parents. Show all posts
Showing posts with label hearing parents. Show all posts

Sunday, June 02, 2013

"F*ck you, Deaf community!": Part II

Sometimes people who think they are doing the right thing actually end up hurting their cause and image when it comes to certain deafness related issues and concerns. I blogged this before a few years back and I think this warrant another blog piece in light of Daniel Winship's Facebook piece that generated lots of negative and positive reactions as a reminder that spewing hate and vindictiveness could simply backfire where targeted parents wrongly accused get the full wrath of the Deaf community's ire. Sometimes quite skewed in their outlook while other times sobering. The thread I'm about to link provide an insight look into the views and perspectives of mostly hearing people on the discussion of cochlear implant. It's a sobering read and seeing how many of them experienced the wrath from certain inner circles of the culturally deaf community their ire and hate. The author of the thread, Fuck you, Deaf "Community"   , is a hearing parent who exemplifies the very example of how the venting of the culturally deaf community can backfire in getting the very parents their support on the cochlear implant issue.



1. My 4-year-old daughter is deaf. She is not "Deaf" with a capitol D. She simply has no hair cells in her cochlea, she has no functioning inner ear. Even though she is deaf, she is not automatically part of your little world of shame and exclusion, and her native language is not ASL. It is not child abuse if we decide to raise her in a household that speaks English. So: fuck you for claiming her as your own, without a second thought to the wishes of her parents.

2. We gave our daughter cochlear implants when she was an infant. We made this long and difficult decision based on the research that was available to us, based on the educational resources available in our area, based on the nature of her deafness, and, yes, based on our own biases and desires. She had her surgeries before she was old enough to make the choice for herself, because to wait so long means to give her hearing long after her developing brain can make the best use of it. It is a well-known and long-researched phenomenon that pre-lingual implantation leads to vastly improved speech and hearing skills. But you call it child abuse. You call it cosmetic surgery on an infant, and more than once you called me a monster for it. It is not child abuse, to make complicated decisions about your kids without their input - it's called parenting. Nor is it cosmetic to give my kid a developmental boost. So: fuck you for heaping accusations of pre-lingual cosmetic surgery child abuse on me.

3. Our family is learning ASL, and have been since we learned our daughter was profoundly deaf. We will use sign as a second language, indefinitely. My wife is in school to become an interpreter. Nor do we believe in a purely oralist tradition; we acknowledge the importance of communication between deaf people without assistance. We get it, ok? We're committed. But because we gave our daughter cochlear implants, you automatically believe that we're out to destroy ASL, to destroy Deaf culture. You never listen to our reasoning, because what do we know? We're motivated by a desire to mingle in both worlds, and yet we're constantly scoffed at by the Deafies on principle. So: fuck you for your pernicious false dichotomies.

4. Speaking of false dichotomies: what the hell do you mean by the "Hearing Community"? You mean the 99% of the world...with functional ears? They form a single community separate from your own? Because obviously it's the Deaf Community vs. the world. Yeah, fuck you and your false dichotomies, again.

5. It's funny how your handicap isn't a handicap. You aren't missing a major sensory organ, it's simply that you have chosen a primary language which is signed rather than spoken. You embrace and welcome the nature of your language and your community, and you are, you say, just as capable as any hearing person. I get it - it's not a handicap. It's not a disability. You feel that there's nothing wrong with your bodies. You aren't broken machines in need of repair. You're not incomplete people deserving of pity. You're a close-knit community because, I gather, there's a conspiracy of doctors and audiologists and educators and academics and hearing-aid industry types, who are, to a person, out to suck your wallets dry then utterly crush and humiliate you, simply because...they hate your lifestyle choice. But you look past all that. You're complete and beautiful human beings and you're happy with the way God created you. There's nothing wrong with being deaf. Deafness is beautiful! So fuck you for demanding - and happily accepting - constant special accommodation for your alleged non-handicap. (And fuck you for demanding respect and understanding from my family, without giving us any in return.)

6. Your precious ASL doesn't have a sweet simplicity; it's just as capricious and arbitrary and fucked-up as any other language. I mean, come on! In our current class, we're learning three - THREE - different signs for the word "car". Which you don't apparently use interchangeably. What the hell? It kind of messes up your principle of "conceptual accuracy". Especially considering that there are many signs for most common words. A lot of the difference is regional, but a lot is just "we do it this way, they do it that way". ASL is, simply, fragmented. English, at least, has standardized on "wh" question words: "who", "why", etc. But English, even in signed form, is "too ugly" for you. Fuck you and your "beautiful language" high horse.

7. ASL purists, who want to distance ASL from English as much as possible, who advocate removing as much fingerspelling from the language as possible, who want to remove as many initial letters ("T" for toilet, "B" for box, etc.) as possible... yeah, I see you fingerspelling common words, I see you happily using intial letters. Fuck you for...well, for being uppity elitists. Go drive a Hummer while you're at it.

8. ASL has no written form. It must use another language - the hated and maligned English - for written communication. Therefore, it's nigh-impossible to look up a new word by its sign. Therefore, memorization plays a much larger role in ASL than in most languages. Therefore, more effort goes into learning how to sign, when other kids are learning how to read and write. Guess what kind of impact that has on illiteracy rates? And...you seem to prefer it that way? Before I met y'all I thought the illiteracy was the result of educational and developmental difficulties. But the more Deaf people I meet, the more I find that you don't much care about reading and writing proper English. ASL and TV is all you need. So...yeah. Fuck you for that, too. By the way, my deaf daughter is learning how to read, you dipshits.

9. While I'm at it, Alexander Graham Bell has been dead for 86 fucking years. When he was alive, he didn't gas any Deaf babies, he didn't sterilize anyone. If you honestly believe that he wanted to prevent deaf people from reproducing, even when his mother and wife were deaf, then I honestly believe you're pretty damn stupid. At any rate, it's a vastly different world today than it was back then. Believe you me, there are plenty of other villains to worry about today. Fuck you for not getting over A.G. Bell already.

10. Again with the calling me an audist in denial of your beautiful heritage. Which is funny, because from my perspective, you're being "deafists" in denial of your own handicaps. But you don't see me calling you out on it several times a week. Fuck you and your utter lack of tact.

But mostly, fuck you for putting a claim on my kid. I've been at this for more than four years, and you're just getting more hostile at us hearing-family-with-deaf-child-who-has-cochlear-implants. Our world, the world of the hearing, the world we're raising our girl in, the world you loathe so much -- our world is fucked up, sure, but it's roses and cotton candy and day-long free pony rides compared to yours.

Wednesday, January 12, 2011

Barb Digi and Professionalism

Barb Digi publicly resigned from the DBC in a YouTube notification to viewers a few days ago after only a few years in the organization. Despite the numerous controversies regarding the organization she made a point about pursuing an area with greater professionalism in her video if you read the transcript at the end. I agree. Professionalism is key to maintaining and keeping one's own integrity. I've noticed that she has tried to keep Deaf politics out of the way and focus on exemplifying on the positive on how signing can help babies, deaf or hearing, to communicate more effectively with parents.



The simplest approach is to show the positive side of signing (not necessarily "ASL" but signing in general) to parents of deaf and hard of hearing children and leave it at that. I produced a video showing an example of how a simple YouTube of my 1 year old hearing daughter signing at her 1st birthday celebration can carry more weight on delivering a simple message...communication can be understood between a one year old baby and adults.  That simple video message alone carries more weight than for highly visible members connected to an organization to go on a rampage, attacking people and other organizations because their views do not agree with that of DBC.  Once you employ yourself in an organization, what you do or say reflects on the organization's standard of professionalism. Once you abuse that then that organization loses its integrity because of the strong association with an organization and presents a very negative image of that organization. Leaders of any organizations must have a goal in mind on ensuring absolute professionalism. Once you lose that professionalism then any message or goal in an organization would lost or damaged.

Parents simply need to be informed and with that information they can make an informed decision. The parents still hold the trump card because they are the ones who make that crucial decision whether going for a cochlear implant or a hearing, using cued speech, SEE, ASL, SE, PSE, SimCom, or oral-auditory approaches. Even the decision to employ the help from John Tracy Clinic, AGBell or NAD. The key understanding here is that it is ultimately the parents' decision for their deaf or hh child on what they feel is best. The decision does not rest with the DBC. Not Gallaudet University. Not NAD. Not AGBell. Not John Tracy Clinic. They do not own babies with hearing loss. All they can do is provide the necessary information so parents can make an informed decision. Politics will simply turn parents off. That's what professionalism is all about. Informing parents and not let politics get in the way by harassing people for their decision or opinions on other mode of communication or educational approaches that people think are good.  By publicly going after people for having a different opinion or approach would push any message about signing for babies out of the window. I think Barb Digi understands that. So does Amy E. Cohen.

And with that, I sincerely wish Barb Digi all the luck and successes in her professionalism goal and new opportunities in helping parents understand the value of signing for all babies. Politics is not the answer. A simple positive message is the answer. Step into that mud puddle of politics, then you risk tainting your own professionalism and an organization's  own standard.

Good luck, Barb. I mean it.

Monday, June 28, 2010

The Wikipedia Entry

Now, as I reflect on this Wikipedia entry when I pointed out to readers that a few entries were made that included a few Deaf organizations listed under as an "Extremist Groups" and wondered if there was a joke in there somewhere. But then I got to thinking on the word "extremist" and exactly was does that mean? What is the context of that word when used?

Under Merriam-Webster dictionary defines the word "extremist" as:
1 : advocacy of extreme measures or views : radicalism
Ok. "Extreme measures" means what? Well, that falls under "extremism" and the dictionary defines it as:
2 : advocacy of extreme measures or views : RADICALISM.
So, it's about advocacy and how far one goes to advocating their beliefs and philosophies. But that alone doesn't give us a measuring stick. Let's see what the dictionary says about "radicalism."
1 : the quality or state of being radical
Ok. What is a being "radical" then?


3 a : marked by a considerable departure from the usual or traditional : extreme b : tending or disposed to make extreme changes in existing views, habits, conditions, or institutions c : of, relating to, or constituting a political group associated with views, practices, and policies of extreme change d : advocating extreme measures to retain or restore a political state of affairs.

I think what we think of radicals here could fall under "b" which is the "tending or disposed to make extreme changes in existing views, habits, conditions, or institutions.

Now, for babies born with a hearing loss where 90% of them are born into hearing parents. Looking from the perspectives of hearing parents who have no understanding or concept about ASL, Deaf culture and the existence of a Deaf community and for parents to hear from a particular Deaf group who pushes ASL first or ASL only agenda onto hearing parents could possible see them as an "extremist group." Especially if they advocate such a law that would force parents to take ASL and provide ASL for their own baby born with a hearing loss (regardless on hearing loss amount from mild to profound). Which brings me back to a recent blog piece I did, "F*ck you, Deaf community! ".

That blog piece I pointed out to readers of a forum that is frequented mostly by hearing parents of a child with hearing loss. One parent vented in anger when he had Deaf people come up to him and basically called him a "monster" and other names while in the presence of his deaf child with a cochlear implant. The decision this parent took wasn't easy when it came to choosing cochlear implant but it was his decision. I'm sure no parents would like being told of what to do with his or her child with a hearing loss and infringe on their basic right in making parental decisions.

And here it all boils down to the AB2072 bill. A bill that gives parents the opportunity to be informed of all communication options in an unbiased format such as what is written on a pamphlet for parents of children that were diagnosed with hearing loss. That way they can begin their direction on being fully informed and soon make an informed decision without feeling being pushed, cajoled, looked down upon, feeling lost, pressured and what not.

Remember, a hearing parents' perspective (or the hearing community) is vastly different from Deaf people on how each of them view a world without sound. For hearing people to hear how certain Deaf groups behave in the effort to make hearing parents feel guilty, to try and push the ASL only or ASL first agenda and even the ideological attempt to try and bypass parental rights to make their own decisions regarding which communication and educational paths they feel is right for their child with a hearing loss. That's enough for hearing people to see these groups as crackpots, extremists, a bunch of idiots, yahoos, and whatever name or image it may pop up in the minds of hearing people.

Maybe what this person did in the Wikipedia entry was a joke. Maybe a point was trying to be made there. Who knows. But it certainly not impossible to fathom the idea that many hearing parents would in fact see certain Deaf advocacy groups as being "extremists" in their actions or beliefs. I or other people might not see it that way but I'm sure there are many who do see it that way. It certainly didn't help some Deaf groups' image when they went out in public to protest against ALL COMMUNICATION OPTIONS in the AB2072 bill. Doing so I'm sure many people would've seen them as going to extremes in not accepting a bill that would allow parents be given information on ALL COMMUNICATION OPTIONS. Who would be foolish to disagree with such an idea?

Now, I'm hearing murmuring that Deafread should get me "blacklisted." Well, good luck with that as you tried to push Tayler to stop providing links that discusses cochlear implant in Deafread as well as having issues in DVTV in getting him to do your bidding and control his creative work. Tayler already knows in his video about me to O'Lois on how I do my blogging. He understands.