The right not to be Deaf or not?

I visited Patti Durr's blog on one of her 6 part series "The Right to be...Deaf" and what I found interesting was the Part V discussion with Joseph Pietro Riolo and the 41 comments written there. Joseph Pietro Riolo's comments were insightful with his wickedly smart comments. I'm combining those recent discussions of Joseph's with that of Patti's recent June 2012 blog on preventing language deprivation in deaf and hard of hearing children.  It is a recent proposal to NAD on the effort to get federal and state governments to intervene on Parental Rights to make informed decisions for their deaf/hh children seen in their proposed model (PDF file):

Proposal: The NAD shall set up a Headquarters Ad-Hoc Committee to look into developing model state and federal legislation to prevent language deprivation.

The Committee shall be comprised of individuals with expertise in various relevant areas including legal, educational and socio- and neuro-linguistic development to look into the possibility of making liable actions that causes harm to Deaf children as a result of the deprivation of American Sign Language and develop model state and federal legislation for such liability.
 
The committee should also look into developing model state and federal legislation that would require medical and audiology personnel to refer deaf infants/children and their families to American Sign Language instruction and education prior to undertaking any medical procedure that may presume to provide hearing.

The committee should also develop a strategy for the adoption of these legislation including identifying which states may be most favorable as early adopters of those legislation.
 
This is to be an ad-hoc Headquarter committee reporting to the CEO. A full report including the first draft of a model legislation must be completed by December 1, 2013.

What was interesting is that in the proposal it stated that:

"The NAD shall set up a Headquarters Ad-Hoc Committee to look into developing model state and federal legislation to prevent language deprivation." 

But looking further into the proposal it went from "prevent language deprivation" to the the more specific prevention on the deprivation of American Sign Language by requiring parents to be referred to ASL prior to any cochlear implantation or use of hearing aids.

 The committee should also look into developing model state and federal legislation that would require medical and audiology personnel to refer deaf infants/children and their families to American Sign Language instruction and education prior to undertaking any medical procedure that may presume to provide hearing.

Yet nothing about requiring parents to look into other types of visual language such as SEE or Total Communication which uses a visual language of the English language done in a signed format. No other points were made about other visual language or other supporting inputs such as SimCom, Cued Speech, Signed English and contact languages.

Now,  I'm against any language deprivation for children whether they are hearing, deaf, or hard of hearing. A child's brain crave communication and language inputs whether it's by spoken or visual language. Even Dr. Ron Stern commented in his presentation that any language deprivation is disabling whether it's sign language or the spoken language it does not matter since the brain does not discriminate and craves input. Which means children with hearing aids and cochlear implants can and do get their language inputs via the spoken language.  Just as well in the latest Italian study on 2 months old to 24 months old deaf children who got their cochlear implants showed that those under 6 months were able to develop excellent language and communication developments on par of their hearing peers. Early intervention works as long as parents are actively involved in the language and communication developments just like the parents have done for the little deaf girl Lotte of Norway who can speak 3 languages. 

As for Joseph Pietro Riolo (JPR) he made some very salient points and asked the important questions when it came to Parental Rights for their deaf or hard of hearing children as seen in Patti's blog Part V series . I'll use some of Joseph's points and comments in this blog by highlighting them. What really boils down to is that parents do have the right to decide on how to raise their deaf child in terms of mode and mean of communication and language acquisition. They just need help in the category of getting the right information in an unbiased manner in order to make an informed decision.

First, let's talk about the article “And the ears of the deaf shall be unstopped: An Examination of the Cochlear Implant From a Jewish Bioethical Perspective” by Rabbi Darby Jared Leigh whose last paragraph makes a conceding point in support of  parents making a decision on cochlear implant.  Commenters tried to use Rabbi Leigh's same article to "prove" their case saying it is "a moral violation to do surgery on a healthy body" per the Jewish religion:

“A consolidation of these views leads only to the idea that from a Jewish perspective we ought not to impose opinions on the people who must make a decision vis a vis the cochlear implant, namely, the parents or legal guardian(s) of deaf children. The responsibility of Jews with respect to the cochlear implant is only to make sure that individuals considering this medical procedure have access to all of the relevant information from the medical community, the Deaf community, and from within Jewish tradition. Once this is done, others should step back and respect the divine image within those individuals, and allow them the space and freedom to reach their own conclusions and make their own decisions.”

JPR makes a comment regarding the last paragraph and I agree with his assessment, too.

This paragraph actually supports the decision to put cochlear implant in a deaf child if his or her parents decide to do so. Also, it supports the decision not to put cochlear implant in a deaf child. In other words, there is nothing wrong with putting or not putting cochlear implant in a deaf child.

Certainly, nothing wrong with putting or not putting cochlear implant in a deaf child as long as parents are adequately informed. Parental rights are ensured here in allowing them to make the necessary and informed decision for their deaf children.

JPR used The Universal Declaration of Human Rights in Article 26(3) to point out that parents have a parental right to choose for their children:

“Parents have a prior right to choose the kind of education that shall be given to their children.” 

And argued that it:

"strongly suggests that the parents of a deaf child can choose the pure oralism for the deaf child." 

So it goes that there is nothing in the The Universal Declaration of Human Rights document that states that Parental Rights would be overridden by the right of a deaf child to be culturally deaf. In fact, there is no mechanism to enforce the right of a deaf child to be culturally deaf over Parental Rights, and there shouldn't be a mechanism to ensure that due to numerous inherent problems as JPR explained why.

How a person is supposed to do when he or she sees that the right of a deaf child to be culturally Deaf is violated? Is he or she supposed to report the violation to police? Is he supposed to report the violation to Child Protection Service (or similar agency)? Is she supposed to report the violation to National Association of the Deaf, Deaf Bilingual Coalition or similar organization that will send a legal team to defend the right of the deaf child? Is he supposed to report the violation to any organization that focuses on human rights? After the violation is reported, how is the right supposed to be enforced? Does this mean that the parents are to be ordered by court or governmental agency to respect, maintain and support the right of the deaf child to be culturally Deaf? What will happen if the parents still refuse to do that?

Indeed. Lots of problems once that Pandora Box is opened.

But let's look at the "Convention on the Rights of Persons with Disabilities" again. In a proposal to NAD they stated their rationale on why state and federal governments should intervene on Parental Rights.

Rationale: Past attempts through the educational system to ensure that Deaf children are not isolated and linguistically deprived have experienced extremely limited success. Alternative approaches needs to be fully explored.

This motion is timely because the United Nations developed and adopted the Convention on the Rights of Persons with Disabilities (“CRPD”) to advance equality further throughout the world. The CRPD makes repeated specific references to the deaf community and sign language in its text.

However, in CRPD document it states that no obligation is required of the parents to use sign language with their deaf children. In other words if parents choose pure oralism without using a signed language approach for their deaf child, the parents do not violate anything in that document supported by the United Nation. Although in the document it does require governments to accept and recognize the use of sign languages as seen in Article 21(b) and (e):

(b) Accepting and facilitating the use of sign languages, Braille, augmentative and alternative communication, and all other accessible means,modes and formats of communication of their choice by persons with disabilities in official interactions;

(e) Recognizing and promoting the use of sign languages.

Also in Article 24(3)(c) it states:

“Ensuring that the education of persons, and in particular children,who are blind, deaf or deaf/blind, is delivered in the most appropriate languages and modes and means of communication for the individual, and in environments which maximize academic and social development."

Note the underlined bold in the above which could mean to include CART services, FM loop, sign language (ASL, PSE, SEE, what have you), speaking and listening, and so on. There are a variety of ways that can meet those assurances.

In Article 30(4) it points out for people with disabilities on the

“recognition and support of their specific cultural and linguistic identity, including sign languages and deaf culture”

As far as I can tell there is nothing in the document (Convention of the Rights of Persons with Disabilities) forbidding the parent’s right to choose pure oralism, ASL, SEE,PSE, SE, SimCom, contact language, manual alphabet, cued speech, Total Communication and such. Just as well there is nothing in the  document that showed any support of governments to actively suppress the use of sign language through laws, governmental actions and so forth, either.

In fact, JPR pointed out an all too apparent of an obligation and concluded that,

"a government has the obligation to deliver education in the modes and means that agree with pure oralism. What the governments cannot do is that they cannot suppress or exclude any modes, means or languages when the parents of children with disabilities want them or ask for them."

And that's the bottom line when it comes to governmental intervention, which is already limited for a reason, on language and mode of communication and that such a decision is still within the parents' rights.

Next in the proposal to NAD they made a claim about cochlear implant and deaf children.

Today, 80% of children born deaf in the developed world are implanted with cochlear devices that allow some of them access to sound in their early years, which helps them to develop speech.

That 80% statistics comes with no references although in Norway the implantation rate is much higher at 90% to 95%.

Every year approximately 40 deaf children are born in Norway. Approximately 90 to 95 % of deaf children in Norway are offered a cochlear implant (CI) in one or both ears. CI is an advanced hearing aid that helps children to perceive sound. Children with CI have special follow-up needs and their parents have to decide preferred communication mode for their child. In Norway, there are mainly three approaches: use of both spoken language and sign language (bilingual communication), spoken language with sign support or spoken language alone (oral communication).

Yet I believe that in the United States we are no where near that rate, not even at 80%. Some developed countries are more active in getting deaf children implanted such as Norway. As for the United States according to the FDA via the NIH webpage:

According to the U.S. Food and Drug Administration (FDA), as of December 2010, approximately 219,000 people worldwide have received implants. In the United States, roughly 42,600 adults and 28,400 children have received them.

And that's to date since 1990 when first introduced to children. About 1 in 1000 babies born is profoundly deaf each year in the United States. Over 4 million babies are born each year which leaves about ~4,000 babies born profoundly deaf each year where perhaps 88,000 profoundly deaf babies have been born since 1990.  About 1/4 of them or about 25% have gotten their cochlear implant so far. As for European countries the implantation rate comes in around at 70%. In Canada it is estimated that approximately 174 deaf children receive cochlear implants each year though no estimates on the number of profoundly deaf babies that are born each year yet Canada's population is roughly 1/10th of the United States so it perhaps reasonable they have the same cochlear implantation rate as the United States.

Ok. Onward to "genocide." Ghastly, ghastly term!

Patti essentially stated that by denying ASL to deaf children it would  be considered as an "act of genocide" per the Convention on the Prevention and Punishment of the Crime of Genocide." But according to the "Convention on the Prevention and Punishment of the Crime of Genocide" it says nothing of the sort.  JPR elaborated: 

Again, if the parents of a deaf child decide to exercise their right to put cochlear implant in the child and to use the pure oralism when raising the child, they do not violate anything in the Convention on the Prevention and Punishment of the Crime of Genocide.

The only thing in the document that seems to be related to the topic on hand is the term “mental harm” as in “Causing serious bodily or mental harm to members of the group;” (Article II(b)). Although the enumeration of groups does not include linguistic groups (“In the present Convention, genocide means any of the following acts committed with intent to destroy, in whole or in part, a national, ethnical, racial or religious group, …” (Article II)), I will assume that the enumeration is broad enough to include the linguistic groups that include Deaf culture.

It may be possible that some people will attempt to argue that depriving a deaf child of ASL is equivalent to “mental harm” on the child. However, the child is usually not a member of Deaf culture if the parents are hearing or are of the Hearing culture. Just because a child is deaf does not mean that he or she is automatically a member of the Deaf culture. In this interpretation, the parents do not violate anything in the convention if they decide to raise their deaf child in a Hearing culture without using sign language.

Two points here as seen in the above underlined bold words. First, there is no intent, systematic or otherwise, to rid or destroy the use of ASL or sign language. Utterly a fantastical if not an unnecessary paranoid belief.  Second point is that a deaf child born into hearing parents is not automatically a member of the deaf culture. So no use in trying to call deaf babies as "Deaf babies" since the term "Deaf" with the upper case "D" has always denoted to mean culturally deaf people. According to Carol Padden and Tom Humphries, in Deaf in America: Voices from a Culture (1988) explains the meaning and difference between "D"eaf and "d"eaf:

We use the lowercase deaf when referring to the audiological condition of not hearing, and the uppercase Deaf when referring to a particular group of deaf people who share a language – American Sign Language (ASL) – and a culture. The members of this group have inherited their sign language, use it as a primary means of communication among themselves, and hold a set of beliefs about themselves and their connection to the larger society. We distinguish them from, for example, those who find themselves losing their hearing because of illness, trauma or age; although these people share the condition of not hearing, they do not have access to the knowledge, beliefs, and practices that make up the culture of Deaf people.

Some organizations even attempted to change that very definition by inserting "Deaf" into their own bylaws without giving any real definition to it and could easily be construed to mean only culturally deaf people. Over the last three decades Deaf (culturally deaf) people have made it a point that they "own" that word and for it to mean explicitly one thing, a group that uses ASL and have a culture.  And that brings up an important consideration about raising a deaf child in a hearing culture without using sign language because doing so does not necessarily violate any of the articles or documents I provided in this blog thus far. 

Below JPR explains and clarifies his position which mirrors much like mine in a lot of ways.

1) It is always my personal position that any deaf child – actually, any child – should have the freedom to sign (not just ASL or any natural signed languages but also SimCom, Cued Speech, Signed English and contact languages). But, I would never want to impose my position on any parents. I would write a true story about a deaf child being punished for signing at home; I would write an opinion article criticizing some parents who do not allow their children to sign; I would make a film that tells about a deaf child who run away from draconian parents who do not let him or her to sign; I would search for grants to research on deaf children who are not allowed by their parents to sign; if I were a professional, I would confront the parents and inform them that they are going too far in not allowing their deaf children to sign; and so on.

But, I would never want to create a new right for a deaf child to be culturally Deaf. When we create a new right for a deaf child, we are eroding the parental right. This will give a precedent for the majority (read: Hearing culture) to create another new right for a deaf child to have the access to spoken language through cochlear implant and doing so erodes parental right further more. If the parents of a deaf child refuses to put cochlear implant in the child, the majority will say, “See, any deaf child has the right of access to spoken language and therefore, your child must have cochlear implant. Never mind your parental right to decide how to raise your deaf child. After all, you want bilingualism. Giving cochlear implant to your deaf child will help bilingualism. Your child will have both ASL and the spoken English language. More power to bilingualism!” The deaf child is taken away from their parents for surgery at an undisclosed hospital.

I may go too far in describing the above scenario but it can happen. It is not hard to predict that cochlear implant technology is getting better and better and the success rate is increasing steadily. Before, the success rate was around 1/3 (33%). Now, it is around 1/2 (50%). Maybe, by the year of 2015, the rate may go up to 2/3 (66%). Maybe, by the year of 2020, the rate may go up to 3/4 (75%). It is very tempting for the majority to override the parental right and go directly to the deaf children and have them receive cochlear implant in spite of the objections from their parents.

Creating a new right for deaf child may be cool now but it could give a new precedent for the majority later on.

In other words, be careful on what you ask for on trying to get the governments to override Parental Rights because it just may backfire.

In my own clarification, I'd be wary of allowing the idea that government be given the consideration to force parents with deaf/hh children on issues regarding sign language, cochlear implant, oral/aural routes and educational upbringing.  Removing Parental Rights is not the answer. Parents have the right to make an informed decision regarding their deaf/hh child when it comes to mode of communication, the means, language development, and educational upbringing. All we can do is provide all the necessary information for parents and provide them them the necessary resources and support so they can make an informed decision. Just as Rabbi Darby Jared Leigh said previously on parents making an informed decision:

Once this is done, others should step back and respect the divine image within those individuals, and allow them the space and freedom to reach their own conclusions and make their own decisions.

And so there you have it.

Reported rapes at Gallaudet University continue to rise

Shocking to see the latest 2010 statistics on the number of incidents of forcible sex offenses or rape reported at Gallaudet University has more than doubled than what was reported for the 2008 year.   The 2010 year was a record high since 1999 based on continuous record keeping (minus 2005 due to lack of data). The statistics on reported criminal offenses can be found here using the U.S. Department of Education's "The Campus Safety and Security Data Analysis Cutting Tool" by typing in the name of the institution to get the reported figures.

The Campus Safety and Security Data Analysis does not provide information on prosecutions for rape charges.

Last year in 2011 I investigated rape statistics at Gallaudet University up to year 2009 by crunching some numbers and included data as far back during the 1991 and 1992 school year as reported in my 2006 blog piece "Deaf Residential Schools and Other Dirty Little Secrets - Part II of III." Last year I found out what the true ranking of Gallaudet University on the number of reported rape for 2007, 2008 and 2009 in comparison to 291 other colleges and universities of similar student population size that have campus dorms and are 4 year institutions showed that the university was in the top 5 on number of rape reported. The 2011 data are not available at this time but will report it once it becomes available.

2010 - 9
2009 - 6
2008 - 4
2007 - 6
2006 - 5
2005 - n/a
2004 - 2
2003 - 7
2002 - 3
2001 - 5
2000 - 3
1999 - 2
1991/1992 - 1

As you can see with the inclusion of the latest 2010 reported statistics on the number of forcible sex or rape on the campus of Gallaudet University has gone up. The 2010 reported number is the highest since the 1991/1992 school year according to publicly available information. Why has the number of reported forcible sex or rape continue to go up? Why more rape victims? Could it be that more are recognizing the importance of stepping forward to report a crime rather than to keep silent because of stigma and fear according to Donna Ryan?

According to Donna Ryan, a history professor at Gallaudet, the insularity of the deaf culture has made it hard for Gallaudet women in particular to come forward to tell their stories. "Part of the difficulty for deaf women in dealing with women's issues like rape involves a fear of trashing the deaf community," she says. In many cases, the women are afraid of being put down by their fellow students for bringing shame upon the university. "The deaf community is small and close-knit," says Denise Snyder, executive director of D.C. Rape Crisis Center. "If you make a fuss at Gallaudet, you've closed a big door."(Silent Screams: a People Weekly report on sexual assault at the nation’s only university for deaf students. People Weekly, June 20, 1994, v41 n23 p36(6)).

That stigma need to be done away with so students would not have to fear reporting rape incidents. Gallaudet University needs to be more open and transparent on this campus rape issue while at the same time get aggressive in tackling this serious problem. This sort of thing should not be kept hidden away from the public eye.

Here's sobering historical look of how many students did report their rapes back in the early 1990s. Click on this link and read what victims at Gallaudet University back in 1994 had to say. Is it still true today, almost 20 years later, that a hidden number of students raped still go unreported?  Has the problem actually gotten worst now at Gallaudet University with 2010 being the worst since 1991? Or is this a sign that more students are finally stepping forward to report their rapes and is a product of better information given to students at Gallaudet University about rape and what to do about rape? Regardless, let's see a better, much improved campus environment and security, and that students and parents are better informed about rape statistics on campus. Students should not be afraid to report these incidents. And should not fear going to Gallaudet University. Each student on campus need to be approached and be duly informed on a regular basis about rape on campus and what they can do about it. No one should suffer and be a victim of rape. One rape is one rape too many. Get the word out.


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I reserve the right to caution readers that not all data are completely or necessarily 100% accurate. This is the best available public  information that I've come across with the info given by the U.S Department of Education.

And a final caveat on reported offenses as seen in The Campus Safety and Security Data Analysis page where I have gotten my numbers:

The crime statistics found on this website represent alleged criminal offenses reported to campus security authorities and/or local law enforcement agencies. Therefore, the data collected do not necessarily reflect prosecutions or convictions for crimes. Because some statistics are provided by non-police authorities, the data are not directly comparable to data from the FBI's Uniform Crime Reporting System which only collects statistics from police authorities.

Dr. Ron Stern's Presentation at NAD

Dr. Ron Stern made some remarkable comments that raised my eyebrows during his presentation at the recent 2012 Biennial NAD Conference that I and other bloggers/vloggers have been saying for years (see here, here, here, here, here, here, here and here for examples of mine) that in order to for any unity or understanding to happen people must respect all forms of communication and educational options for deaf and hard of hearing children rather than point fingers and assign blame. Dr. Ron Stern said that such actions focusing on blame will surely be a failed cause. And we have seen those results time and time again, too. The culturally deaf population is quite small when compared to the larger population seeing that there are some ~600,000 culturally deaf people vs 36 million people (my figures) with hearing loss in the U.S. (see Stern's comment at the 30:50 mark in video below on how small the culturally deaf community is). With the small community Dr. Stern said that it makes "our fight harder."  There is an unnecessary need to use "a*dism" as way to attack people and Dr. Stern re-iterated his doubt and uncomfortableness on using that term which took me by surprise. Taken from  a live captioning quote of Dr. Stern whose presentation can be seen in a non-captioned taped YouTube video at the 57:58:00 time stamp:

 "A*dism makes me feel uncomfortable because it seems to suggest we only care about deaf/hh issues and how we are viewed by non-deaf."

He's right, too. And he made a point about the use of "ableism" which he prefers to use because it is more inclusive of people with varying disabilities since many deaf and hard of hearing people do have a secondary disability. Using a*dism made him feel uncomfortable because it seems to suggest that culturally deaf peoople only care about deaf/hh issues only and how we are viewed by non-deaf people without disabilities,  even by some hearing people with disabilities as well. Dr. Stern goes on to say that hearing people look at our issues through their lens as hearing people who do not have disabilities which can be problematic.  The term "ableism" is more broad and includes all kinds of people with disabilities. The problem is about how people without disabilities who do not take our issues seriously enough. And how they look down on us.  




At the 1:23:25 time stamp Dr. Stern commented that we must wake up and support the diversity of deaf people and that one size does not fit all.

I agree. Diversity is important whether a deaf or hard of hearing person signs or not, whether a person can speak and listen or not, or whether a person signs using ASL or SEE. This is exactly what ICED said when they issued a global call to "accept and respect all languages and all forms of communication" in the education of deaf and hard of hearing people. This is a simple and straight-forward if not common sense announcement.  Although there are no mentions of how its done or whether one method or approach would be satisfactory enough or the combining with other methods for a more rounder, comprehensive approach would be more suitable. No. Nothing like that. Just that people simply need to accept and respect all languages and all forms of communication when it comes to the education of deaf and hard of hearing people. Short, sweet and to the point. I'd rather embrace diversity than to be play a perennial victim.

In fact, Dr. Sterns' emphasis on recognizing and supporting diversity of deaf and hard of hearing people and that one size does not fit all are very similar to what Dr. Jane K. Fernandes have said in her presentation in 2011 at NTID (National Technical Institute for the Deaf) on the topic of inclusive Deaf Studies where she mentioned about ICED and pointing out how they recognized that the Milan resolution was in error and then she proceeded to discuss respecting all languages and forms of communication. The main thrust of her presentation was that the discipline of Deaf Studies ought to be broadened to include a variety of diverse deaf people outside of Deaf culture and ASL. In short, Deaf Studies should not just be about Deaf culture and ASL but to include people who use SEE, cued speech, oral/auditory approaches, use of hearing aids, cochlear implants, implantable hearing aid, use of technology for improved communication access and so on. That's recognizing diversity in a deaf and hard of hearing society.

At 1:23:42 Dr. Stern pointed out that "I love this quote" and said that he is nervous about his presentation and pointed out that " We have met the enemy and he is us." And used examples of pointing fingers at Oberkotter, Options school and says "be careful" because pointing a finger at them will have more fingers pointing back at you. It's better and easier to change from within than to try and get other organizations to change because that has not been successful. He made a point that "ableism" was a much better use of the word than "a*dism." His main point at the 1:24:39 time stamp was that "our goal and message must be clear" and not become our own worst enemy in helping create a negative perception of themselves when you have people on the outside looking in.

This is what I and others have been saying for years in blogs and vlogs especially when new Deaf grassroots organizations as an "organic society" get formed with an agenda in mind to attack deaf and hard of hearing support organizations do they become their own worst enemy. They focus on a closed society concept rather than an open society concept. In fact, Dr. Stern's presentation seems to point in the direction in favor of an open society concept which certainly raised my eyebrows.

At 1;35:00 Dr Stern pleaded, "Please, keep your eye on the prize. IDEA changes. State issue changes. We support, not against, diversity, one size does not fit all. If we support ASL-only, we'll lose. If we support deaf schools only, we'll lose. Support of deaf children is not about saving our deaf schools. It's about having different options. Diversity of deaf children must have options to choose from such as deaf schools, mainstream schools, even oral programs, doesn't matter. Whatever is the best and right match to place that deaf child. It's more than just about saving our deaf schools."

Exactly.  One does not fit all. This ought to be the clearest message of them all recognizing each deaf and hard of hearing child functions and responds differently to stimulation and inputs when it comes to language and communication. Hearing loss range from mild to profound and the fact that hearing technology and other assistive technologies continue to play a huge role on helping find the best and right match to place that deaf or hard of hearing child. It may or may not require the use of hearing technologies but all options and approaches must be considered.

Dr. Ron Stern even said that "Child First is not against oral method at all" and clarified that those who advocate for Oral method only is a challenge. True. The same idea can be said for ASL only. Dr. Stern emphasized on getting the "I" back in IDEA which is an individualized plan based on a child first concept on providing access to language and communication. There were several principles Dr. Stern brought up (with thanks to Gina's input):

- Communication and language is a human and educational right.
- Any language deprivation is disabling where sign language or the spoken language does not matter since the brain does not discriminate and craves input.
- There is no such thing as a one size fit all for deaf and hard of hearing children.
- Make it an individualize approach.
- Provide the necessary access in order for interaction to happen.
- Make sure parents have complete information regarding their deaf/hh child to make an informed decision.
- There are multiple pathways to language learning through eyes and/or ears.
- Family involvement is critical.

As for NAD, I've always considered that organization as good on many levels but see them as horrendously skewed to the side of mostly if not exclusively only culturally deaf people. An organization that is run by culturally deaf people with deaf culture ideals while claiming they represent all deaf and hard of hearing people get a bit far fetched sometimes.  Whenever I or others bring that up the usual defense I heard is to throw in the fact that NAD defends and support captioning which is great. But that does not dissuade from the fact that NAD organization does not represent a picture of diversity among all deaf and hard of hearing people on their board. Just a picture of mostly culturally deaf people only.

I HATE HEARING PEOPLE!!!

When deaf people say that they "hate hearing people" there are reasons why they say that. It could be because of their childhood history or a certain event in their life as a teen or adult that triggered it. But if you work in a business operated by deaf people that offer products or services to deaf and hearing people and you carry that attitude in your line of work on how you don't like hearing people and make efforts to avoid them as much as possible you won't get very far in your job or career. Believe me, you won't.  You have a choice of either to effectively engage with hearing customers or potential clients in your line of work just as you would with deaf people. If you don't do that then you will suffer the consequences because the business you work in depends on selling those very products or services that keep your company alive and running, not to mention affecting every employee who could be impacted by your selfishness on not to deal with certain customers or clients more directly.  By engaging I mean using every variety of communication options there are that you can use instead of sticking to one communication option only.  Because if you don't love your customers (both deaf and hearing, and everything else in between) you ain't going anywhere and succeed in life.  Such an attitude in a closed society can only go so far and that success will only be limited if any at all.

A customer is not always right

There's an old adage "A customer is always right" believing that what a customer says about a product or service of a business is always true and absolute. Anybody who actually believe that a "customer is always right" is simply naive in the way the world works. Customers are still human beings. They are still capable of lying and deceiving in order to get what they want. It's true that businesses should listen to what customers have to say and be understanding of their comments or opinions but that does not mean a company should bend over backward at every whims from every customer.  Many businesses do listen out of concern to ensure that they offer the best services or products possible. It's about having the courtesy to listen to their customers first. 

"I don't think that the customer is always right any more than I think that the employees are always right or that a shareholder is always right," conceded Reichheld. "You do owe it to your business to understand the root cause of the feedback and what implications it has on your decision making, prioritization and your actions. But, there are criminals out there that are your customers. You want to keep those customers away. Not just from your cash registers but from your employees too, because they are abusive and they make life hell for everyone in your business. The Net Promoter Score is based on the golden rule that we should treat others the way we would want to be treated in their shoes, but it takes a lot of deep thinking to do this right. It's not superficial. Think about what actions a business takes when it gets a zero or a one score? The business should dig in to figure out what's wrong, try to fix it and understand how it feels to be in the customer's shoes, but it doesn't always mean that they are the right customers for your business."

Let's take the ZVRS post-NAD vote latest brouhaha concerning the whole "deaf militants" snafu by which Julian Moiwai have already issued a public apology on Twitter for his "militant" remark.  For a person who works for ZVRS to make a public comment in such a manner breaks the typical cardinal rule of any businesses and that is to stay "neutral" in the areas of politics. That's typically the golden rule and not that a customer is always right. In this case, deaf politics is the area of politics that ZVRS tried to avoid in the first place (but spectacularly failed in this instance) when most of their customers are the signing deaf and hard of hearing customers.

You might be aware of the NAD Presidential elections. Chris Wagner – our Senior Vice President of Business Operations and Marketing – has been selected to serve as the NAD’s next president. Regardless of your support prior to and after the elections, I would like to ask you to do us a favor.

ZVRS is currently being bombarded on social media by Sheri supporters or so-called “Deaf militiants.” Please do not participate in any means of communication by putting gas into this flame.

If you come across something that appears offensive or defamatory toward ZVRS, please send a direct link to my attention, and it will be followed through.

Julian Moiwai unwittingly was the one who put "gas into this flame."  But he stepped up and apologized to Sheri Farinha (one of two candidates for the NAD presidency) in public on Twitter (although never contacted her personally first (email or video phone) which was another business rule of thumb that ZVRS broke where she found out about the apology from other sources).

The old adage "customers are always right" is false. Some customers are right. Sometimes they are wrong. And others simply aren't being truthful. It is the duty of businesses to listen to all of their customers.

Congratulations to Chris Wagner as the next NAD president for 2012 - 2014 term. He had the graciousness to thank Sheri after the vote seen at the 4 minute mark.

How come NAD never publicly apologized to Deaf Native American Indians?

How come NAD has never publicly apologized to the Indian tribes in America when their mostly-white dominated Deaf culture at the time unwittingly helped with eradication process of some of the tribes' Native American Indian Sign Language by forcing them to choose between ASL and ISL?

Both KPISL and PISL have become endangered languages. KPISL is not much used among the pueblo’s younger generation owing to their learning school English, ASL, or signs that follow the spoken English word order. Before the 1990s, American Indian Deaf/Hard-of-Hearing tribal members usually left home to attend a residential school for the deaf located far away (Baker, 1997; Lane, Hoffmeister, & Bahan, 1996). 

At the school, there was usually no formal instruction of American Indian or American Indian culture and signs; only Deaf culture and ASL were taught, leading many American Indian students to join the “Deaf World.” After graduation, the students had to make difficult decisions about where and how to establish themselves: on the pueblos with hearing families and friends, in urban areas with other Deaf/Hard-of-Hearing people, or in border towns with limited access to both groups.

How come there were no efforts by Deaf educators at the time to help deaf Indians in deaf schools on helping preserve their Indian Sign Language heritage in the process and encourage them to maintain that contact and relationship with their Indian elders on ISL? How come no public apologies by those schools? No apologies from NAD on behalf of the schools across the United States, including Gallaudet University? Maybe it's time that NAD and other deaf institutions make the effort to apologize for helping with some of the eradication of deaf Indians' own ISL when they were forced to choose and with no effort to help them preserve and maintain their own ISL identity? Perhaps NAD does not need to apologize? Should any apology be needed at all? After all, there are some culpability involved here and not exclusively just the "government" of which I agree played an almost exclusive role in helping ISL and its signing heritage disappear.  Regardless, should an apology be in order from NAD on behalf of deaf schools who may have played a part of the role? 

Combat with Grizzly Bear

A statue of two Indians fighting a mother grizzly bear in her effort to protect her two cubs was created by Douglas Tilden, a world renowned deaf sculpture, stands at the California School for the Deaf in Fremont, California.  The sculpture is called "The Bear Hunt."  It is also known as "Combat with Grizzly Bear" as explained by Jack Gannon.

Born May 1, 1860 Douglas Tilden lost his hearing at the age of 4 due to Scarlet Fever. Two years later his parents enrolled Douglas at the California School for the Deaf at UC Berkeley. He became an honor student and graduated from the school in 1879 at the age of 19. He soon accepted a teaching position CSD where he stayed there for eight years. It was during the summer vacations his artistic talents began to flourish.

Summer vacations were spent studying drawing and painting. In the summer of 1883, he discovered the joys of sculpture. He returned to teaching in the fall but continued making models in his leisure time. He dreamed of studying in Paris, then the mecca of most would-be sculptors. His clay model Tired Wrestler, a young, athletic, male nude figure, impressed the Board of Trustees of the California School for the Deaf enough that they gave him a loan of five hundred dollars for study in New York. In 1887, he resigned his teaching post and left California. 

Thanks to a grant of $600 per year from the Durham Fund, administered by the California School for the Deaf, Douglas embarked for Paris in May 1888. After visiting the Salon des Artistes Français on the Champs-Elysees, he went to work on the Baseball Player. With his unorthodox, purely American motifs, Tilden was the first California-born sculptor to win recognition outside of the U.S. by being accepted in the Paris Salon in 1889, then again in 1890, 1891, 1892, and 1894.

 And thus Douglas began his career as an internationally known sculptor.

But another battle is brewing at CSD and that is the effort to get rid of "The Bear Hunt" sculpture on the CSD campus grounds stating that the statue is racist in nature "racist imagery" according to the latest online petition that began on June 28, 2012 calling for the removal of Tilden's statue:

We feel that while Tilden is indeed a respected Deaf artist in our community, he remains a white male from the 19th century and the sculpture still represents generations of dehumanizing violence towards Native American communities. Such depictions have no place at a school, particularly if a school aims to uphold principles of racial and ethnic justice.

Though “The Bear Hunt” has stood at the front of campus for years, this “branding” situation served as an opportunity for us activists to challenge our social consciousness in how we have perceived and now perceive this statue. How long has the statue stood in front of campus without being challenged? How long have some individuals’ misgivings about the statue were ignored? We are working on collaborating with Native American Deaf and Deaf People of Color organizations on this issue in order to mobilize community dialogue regarding the statue.

The petition failed to explain exactly how or why the statue is racist other than explaining that the sculptor is a white male who sculpted a statue depicting an ultimate battle and will to live between two Indians and a mother grizzly bear while trying to protect her two cubs .  Exactly how does the statue dehumanizes violence towards Native American communities? It doesn't. It's about survival.  Douglas Tilden explains about his "The Bear Hunt" statue:

In 1892, Tilden finished a huge monument, the Bear Hunt. He wrote, “My Indian and bear present a full front, both in so full a vigor that who wins must forever be a question in the spectator’s mind.” The Bear Hunt arrived at the California School for the Deaf in Berkeley in 1895 after being exhibited for several months at the Art Institute in Chicago. Both the school and the Bear Hunt are now located in Fremont.

In other words, while looking at the statue of a battle between beast and man makes you wonder, who will win the battle?  The Indians or the mother grizzly bear? What is the story behind the fight for survival? Did the Indians accidentally come across the mother Grizzly bear? Or got too close in the bear hunt? However, there is nothing racist about the "The Bear Hunt" sculpture showing two Indians battling to survive a mother grizzly attack while trying to protect her two young cubs. Hunting for bears was common. Indians hunted grizzly bears for food and other materials but at the same time they were revered and respected their fearsome strength, independence and power to the status of being a "spiritual god."

Many Indians feared the grizzly bear but still they hunted the large bears for food, clothing, and even jewelry. Claws were made into necklaces and often worn hanging from their waistband.  Because of the Indians' beliefs that the bear had some spiritual power, wearing a bear claw necklace would mean protection and good health to the Indian wearing it.

Today Indians still wear necklaces of grizzly bear claws but only a few are preserved from the 1800s in museums. One famous bear claw necklace can be viewed at the Peabody Museum at Harvard. Since bear claws were objects that Indians treasured, very few were obtained outside of the Indian tribes.

Shortly after the petition to have the statue removed (only 53 signatures so far) another petition came up to counter the petition for removal in the effort to keep the statue on the campus grounds of CSD.

CAD Bay Area Chapter president, David Prince, speaking... I disagree with DYUSA Bay Area Chapter to remove the Bear Hunt Statue (BHS) off the campus of the California School for the Deaf. The Bear Hunt statue is not a racist; it illustrates us to understand the visual history how the Indians fought against the nature. It demonstrates the visual education to everyone how it looks like in their time of struggle. It was like a battle in nature, Human versus Bear.

So far there are 357 signatures to keep the statue vs 53 signatures to get rid of it. A strong sign that common sense is prevailing.  I see no "racist imagery" in that statue other than a battle of survival between man and nature.  Violence is part of the game of survival in nature. This is all about using emotional gimmickry to play the Deaf political correctness game based on some vague and obscure reasonings. 

What is palpably ironic, at least to me, is that Douglas Tilden's own statue work is facing the possibility of being rejected by the students of CSD and perhaps the school itself. The irony comes from the fact that  he worked at the CSD for several years as a deaf teacher and later on in his life tried to go back to CSD to work as a teacher again but only to be rejected because at the time CSD  stopped hiring and employing deaf teachers.  Douglas Tilden is turning over in his grave seeing that his own work is once again facing rejection.  This Deaf political correctness has simply run amok with no clear thinking whatsoever using false emotional appeal.

Visual Communication

There are deaf/hh people I know who grew up with SEE with their parents learning the English visual language. I'd say those deaf kids were lucky to have parents willing to sign as part of the visual communication effort than to rely on audition alone (i.e. speaking/listening). The oral and aural route may be a difficult route to take even though many kids have fared well while others didn't and that signing would've been helpful.  It also could have easily been no signing (ie. SEE, ASL, PSE, manual alphabet, LOVE, etc) whatsoever with no visual form of communication (including CUED speech) and just rely on their hearing aids only and do the whole oral/aural gambit instead. But luckily for them a visual language (e.g. SEE) was used to communicate and thus a foundation was indeed built. It may or may not have been a solid foundation but at least a foundation nonetheless.

Many SEE kids who are now adults show their gratefulness for their parents' contribution on establishing a visual communication effort with them. It could've been a lot worse. It could've been no signing at all.  Although I noticed some adults who grew up with SEE developed a certain disdain towards their own upbringing by their parents on the SEE usage simply because their parents didn't use ASL in the first place. How droll. How about at least show some kind of gratitude instead of being a snotty person about the whole affair and stop with this misguided anger towards parents for providing SEE instead of ASL? Signing in SEE became a familiar affair for those growing up with English visual language and because of that it helped those make the transition over from SEE to PSE or to ASL in a much more familiar environment as opposed to deaf/hh people who have never signed in SEE, PSE or ASL at all.

Be thankful you were exposed very early to SEE which is visual form of the English language rather than having no visual language at all.

Just ...... stop whining about SEE.

Open Communication and Open Society

Caption This!

There's no big mystery about this when it comes to believing that an open communication regardless of the method used is key to help people with hearing loss feel comfortable and on equitable grounds with the rest of their hearing peers. There are millions of people who feel the same way as I do. There are a variety of niche areas of technologies and services today that provide the advantage to help people with their communication needs and access. Just because deaf and hard of hearing people who know sign language does not mean they will be able to understand completely what was said in an ASL performance any more than deaf and hard of hearing people with their hearing aids and cochlear implants will understand completely what was said in a spoken (speech) theater performance or movie. I am talking about the whole range of population of people with hearing loss in the United States numbering around 36 million people versus a certain but limited number of those who are deaf/hh and fluent in ASL (around 600,000).

Just because deaf and hard of people who are fluent or know sign language does not mean they prefer always a signed performance but also like to attend performances by hearing people such as music (rock, country, etc) band on stage with their lyrics, stage performances and just your everyday movie theater while providing captions.  Both communication access using open captioning and sign language interpreters offer the best of both worlds. 

Q.What about services for the deaf or those who are hearing disabled? What exactly is open captioning? 

A.Open captioning uses a portable LED screen set up orchestra right or left, by the proscenium. It’s rarely on stage because we don’t want to disturb the artistic look of the show. It faces a particular side of the orchestra where we have made tickets available to people with hearing disabilities. 

We also offer sign language interpretation, but it is of no help whatsoever to people who are not deaf. Where our department is growing is in providing open captioning because there’s such a demand for it. 

Far too many people who don’t hear well are not going to admit it. The benefit of open captioning is that it’s passive assistance. It’s there and you can refer to it or not. You don’t have to identify yourself as having hearing loss. That’s very appealing. 

People with hearing loss want to make use of any hearing they have. They will use assisted listening devices in conjunction with the open captioning so they can understand some or most of what is being said.

Open captioning should be available to all regardless of the situation. You just never know who in the audience will need one. The same goes for Gallaudet University theater shows such as their recent Hamlet performance that was done in ASL and that all of their performances were voiced under the direction of Dr. Lindsey Snyder. But no open captioning for those who are new or weak on sign language and those who can hear Snyder's voice but would need assist with captioning. An ironic twist and a cruel but blatant discrimination against deaf/hh students and people who are relatively new or weak on sign language. A sign that Gallaudet University continues to be a closed society when it comes to having an open communication policy. One can still be in favor of sign language in an open society that advocates open communication but the converse cannot be true of those who are unwittingly in a closed society.

Each year Gallaudet University host this Jump Start program (formerly known as New Signers Program) to help incoming first year and transfer students improve their sign language skills. For them it is easier to improve on their expressive signing than receptive signing. Just because they attended the Jump Start program does not make them experts on ASL or will be able to understand everything that's being signed on stage for example the recent Hamlet performances in April.  Many students are hard of hearing and can hear and understand a person speaking with his/her voice. Each person's receptive skills and understanding of the spoken word varies. Even after the first and second year at Gallaudet University does not mean students receptive skills will guarantee 100% understanding the signing of ASL such as ASL performances on stage. In fact, by not providing open captioning to the audience who fall between understanding some ASL to understanding some of the spoken word at a Hamlet play is violating ADA accommodation and Section 504 law.  Students should be encouraged to file grievances for this transgression at Gallaudet University.

II. Scope of Grievance

Any University student who believes that he or she has been subjected to discrimination on the basis of disability or has been denied access or accommodations required by law shall have the right to invoke this Grievance Procedure. In general, this Grievance Procedure is designed to address the following types of concerns:

1. Disagreements or denials regarding requested services, accommodations, or modifications to University practices or requirements; 
2. Alleged inaccessibility of a University program or activity;
3. Alleged harassment or discrimination on the basis of a disability; and
4. Any other alleged violations of the ADA and/or Section 504. 

According to Section 504, and since Gallaudet University is a recipient of federal financial assistance, a post secondary institution has an obligation under to ensure accessibility to students with disabilities, including those with hearing loss and the need for communication accessibility.

An important responsibility of the Office for Civil Rights (OCR) is to eliminate discrimination on the basis of disability against students with disabilities. OCR receives numerous complaints and inquiries in the area of elementary and secondary education involving Section 504 of the Rehabilitation Act of 1973, as amended, 29 U.S.C. § 794 (Section 504). Most of these concern identification of students who are protected by Section 504 and the means to obtain an appropriate education for such students.

Section 504 is a federal law designed to protect the rights of individuals with disabilities in programs and activities that receive Federal financial assistance from the U.S. Department of Education (ED). Section 504 provides: "No otherwise qualified individual with a disability in the United States . . . shall, solely by reason of her or his disability, be excluded from the participation in, be denied the benefits of, or be subjected to discrimination under any program or activity receiving Federal financial assistance . . . ."

OCR enforces Section 504 in programs and activities that receive Federal financial assistance from ED. Recipients of this Federal financial assistance include public school districts, institutions of higher education, and other state and local education agencies. The regulations implementing Section 504 in the context of educational institutions appear at 34 C.F.R. Part 104.

Services students should be able to request at Gallaudet University:

* American Sign Language Interpreter
* Signed English Interpreter (SEE-Signing Exact English or PSE-Pidgin Sign English)
* FM Systems and Conference Microphones
* Voice interpreter
* CART
* Remote Captioning
* Cued Speech Transiliterator
* I-Communicator
* Typewell/C-Print
* Professional or Volunteer Notetakers

Even though Gallaudet University obviously supports ASL many are calling for the exclusive use of ASL for all or "ASL at all times." That'd be if only the educational institution in question was a private educational institution that receives no federal funding then it wouldn't fall under the rules of Section 504.  But since Gallaudet University receives annual federal funding for as long as it has been opened it must abide by Section 504 laws.  Section 504 gives the power over to students who may request communication accessibility other than ASL or voice.

Gallaudet University once again violates ADA law and Section 504 for not providing an alternative communication access for  their signed ASL performances for students and people who still lack the necessary receptive skills to understand fully the signed ASL performances.  Gallaudet University continues to be the living and breathing conundrum for deaf/hh students new to the world of sign language and they are unable to even enjoy and understand signed performances. Gallaudet University was willing to provide voiced support of their recent signed Hamlet performances but was unwilling to provide open captioning to those who are weak in signing and understanding the spoken words. But the irony is that Gallaudet University put up a Hamlet play when a cruel twist of fate usually happens in a Shakespeare play and this cruel twist of fate is the continued ignorance of deaf/hh students who are new or are in the middle of such worlds.


"This above all: to thine own self be true,
And it must follow, as the night the day,
Thou canst not then be false to any man."
- William Shakespeare, Hamlet, 1.3

The graduating class: You're not special

To those deaf and hard of hearing students who have graduated from high school or college, I have something to say to you in the hope that you'll be inspired to rethink of what the world awaits you once you get your diploma or degree.

All of your life growing up you have been coddled and pampered upon. You have been fawned and doted upon by your parents and grandparents. Your Mommy or Daddy, or both, have held you, hugged you, kissed you, fed you breakfast, lunch and dinner, wiped your bottom, trained you, taught you, listened to your complaints, your rants, your rage, your sadness and joys. You've had people who encouraged you, sympathized you, consoled you and encouraged you again umpteen times.

And over the years you had your sports games, your theatrical plays, musical recitals, and the many science fairs. Or you became class president, secretary or treasury and delved into school politics or became the school newspaper editor or reporter. Maybe you were well liked by friends and acquaintances where they would smile at you the moment you step into a classroom or whenever you approach them at a cafeteria table. Or they would take delight with your constant tweets or blogs thinking you're cleaver or funny.

Having said those things just don't get the idea that you're special because you're not. You're not the center of it all. The Earth is not the center of our solar system. Our solar system is not the center of its galaxy. Our galaxy is not the center of our universe. You're one of the many thousands of deaf and hard of hearing people who have graduated at a deaf-run school, a mainstreamed one or a regular school. Some graduated as valedictorians or class presidents, often with honors of some sort with glittering trophies and shiny medals and the many accolades that came with it. Each of you at graduation day all dressed alike. Same diploma or same degree that everybody expect to have in their hands with the only difference being it has your name on it.

Instead of thinking you're special, which is a dangerous thing to do, look for challenges in life. Embrace them. Think of it as if you're on a quest to climb one of the highest mountains because it's there. It beckons you and smirks at you saying, "Try and climb me! I bet you can't!"   You climb because it is there. You see it as a challenge. You climb so you can see the world below you and not about whether the world can see you because you're an insignificant speck on that mountain top. No one sees but yourself. You're not special.

There are 6.8 billion people on this planet.  Once you understand that then that's when you may finally understand that you're not that special.  You are preparing and bracing yourself on what life will ultimately give you. But to be sure, please do whatever you do for no other reason than you love it and believe in its importance. And in the process change our culture so that it rewards genuine passion, genuine hard work and genuine achievement instead of accolades as an appeasement.

Happy belated graduation! 

Posting rules....and not just for deaf people only.

I've added a painting of Uncle Sam seen on the upper left side of my blog where it is linked to my 2010 blog piece on rules for posting comments in my blog. A very simple guideline that anyone can understand and follow it, even a caveman can do that.  I'm making this blog to clarify the one thing that a few deaf/hh people have brought up recently thinking that if they leave their name behind and I know who that person is they fear that I will delete their comment while still in moderation mode.

So far that has never happened. Go figure.

The rules I've posted back in 2010 are quite explicit and it doesn't matter if a person post his or her comments anonymously or post comments using their name identifiable to the public. To use the excuse that "I don't want to post my name because you will delete my comment because you don't like me" is a pathetic one if not a cowardly excuse. Bottom line, it doesn't matter if you want to post your comments anonymously or attach it with your name. My posting rules are to be followed. That is where I draw the line on whether a posted comment gets accepted.  Extremely few comments do not get published compared to the thousands that do get through. I am a lot more lax than you think when it comes to moderating comments. But, please, please, do not use the lame excuse that just because you think I don't like you and that once you put your name out and I know who you are thinking that I will delete your comment as a result. Hardly. If you follow my posting rules, you're on safe grounds. Abuse your privilege here then expect your comments not to show up. Quite simple, really. Honest injun!

Hiking for health and leisure

Hiking can be a fun, enjoyable and relaxing form of exercise. I know. I do a lot of hiking (here and here, for example) in my own leisure time. A chance to get outdoors and enjoy the sights, sound, smell, touch and taste of what nature can offer you whether it's plucking some huckleberries along the way to munch on or a get a whiff of wildflowers blooming along the grassy open meadows or seeing the vast openness and grandeur in front of you. Here's a video of a bunch of deaf hikers enjoying their day in the outdoors. Take some time to "get away from it all." Do something bold. Go outdoors and hike!

Cord Blood Stem Cells Treatment for Children

I just couldn't believe it. I read in one discussion forum where one person made a big stink about a current year long study using a deaf baby's own cord blood stem cells to treat the baby's own sensorineural deafness (which has so far appears to continue to help restore the baby's hearing loss) saying it needs to be experimented on animals first to determine the safety of cord blood stem cells. First off, the blood cord stem cells are compatible only to the baby and not in some animal. That sort of ill-conceived logic was enough to make my jaw drop. Secondly, cord blood stem cells are being used to treat a variety of conditions and even injuries such as Traumatic Brain Injury in children in one study which uses the same IV infusion process as with deaf children in a hearing loss treatment Phase I study.

A ground-breaking clinical trial is now underway at The University of Texas Health Science Center at Houston (UTHealth) is an innovative step in a growing number of studies exploring the potential of stem cell-based therapies to help initiate repair and induce healing of damaged brain tissue. The study is being performed in partnership with Children's Memorial Hermann Hospital, UTHealth's major children's teaching hospital.

The trial will involve children who have sustained traumatic brain injuries and who have access to their own umbilical cord blood stem cells, which were banked at birth. Children who meet the trial qualifications will travel to Children's Memorial Hermann Hospital to receive an IV infusion of their cord blood stem cells. They will then be followed at six months, one year and two years.

"The reason we have become interested in cord blood cells is because of the possibility of autologous therapy, meaning using your own cells. And the preclinical models have demonstrated some really fascinating neurological preservation effects to really support these Phase 1 trials," says Charles S. Cox, M.D., Children's Fund Distinguished Professor of Pediatric Surgery and Pediatrics at the UTHealth Medical School, director of the Pediatric Trauma Program at Children's Memorial Hermann Hosptial, and principle investigator of the trial. "There's anecdotal experience in other types of neurological injuries that reassures us in terms of the safety of the approach and there are some anecdotal hints at it being beneficial in certain types of brain injury."

The Phase I safety study will enroll 10 children ages 18 months to 17 years who have suffered moderate to severe traumatic brain injury (TBI) and are within 6 to 18 months of their injury.

People need to understand the potential self-healing (literally) factors of using your own cord blood stem cells. According to The University of Texas Health Science Center at Houston (UTHealth) on cord blood stem cells:

Cord blood is one source of stem cells that has shown promise in preclinical research and is now being explored in experimental treatments for patients with brain injury. In the preclinical or lab setting, research has shown that cord blood stem cells have the ability to divide and change into neural-like cells. Additionally, these stem cells have been shown to migrate to the area of injury, and to secrete therapeutic factors, which may help repair brain damage. Further preliminary findings from studies underway at UTHealth indicate that cord blood stem cells may also alter the body's immune response to injury, by interacting directly with the organs and cells of the immune system that enable the body to better repair itself.

In other words, you could possibly (and literally so) heal thyself using your own cord blood stem cells by enabling your body, in the example of hearing loss in babies, to better repair itself. Especially among babies who gets treated early on and with the help of their own cord blood stem cells, and if it turns out to be successful for the full restoration on hearing, then it becomes a cure. This process would allow deaf babies early on take advantage of the 4 year window of opportunity to take advantage of the active auditory cortex and be able to grow up as a hearing person in every respect.  With this Traumatic Brain Injury study and the Hearing Loss study.  We should know more the results of these studies by next year on whether cord blood stem cells treatment is a success or not.

Communication is a two way street...captioning, please!

The one thing I've learned in life is that people's perspectives are different from each other based on their life experiences, their upbringings, their interests, and the people they associate with on a daily basis. Those are the things that makes a person for who he or she it. I have met all kinds and are friends with them. Those who have mild hearing loss to those who are profoundly deaf to those who are culturally deaf to those who are hearing whether they know signing or not. And then you have those who prefer to speak/listen to those who prefer to sign only to those who prefer other methods of communicating. They have their own way of communicating and I respect that. That is not for me to judge. But the one common thing we all have in connection, especially among the 36 million people in the United States with hearing loss, is that many of us need captioning in our everyday lives.

But the funny thing is that some people do have a habit of judging others simply because they can hear a little bit better, talk a little bit better, sign a little bit better or the fact they prefer a different way of communicating. So, exactly what is the difference if deaf people on a theater stage signs in ASL but provide no captioning for the audience versus hearing people on a theater stage talking with no captioning for the audience to see what's being spoken? Both are purposefully excluding people who can't hear quite as well to understand fully the spoken words and those who know some, little or no sign language to understand fully what was signed. Both situations discriminate against the majority of people with hearing loss. Both situations do not invite people into their world because of their own ignorance.  Just because a person is deaf or hard of hearing does not mean one is fluent in sign language or knows sign language. Just because a deaf or hard of hearing person can hear some words being spoken does not mean one can hear all of the words being spoken on a theater stage, on television, in a social setting, in a movie theater, and so on.

Why is it ok to have sign language interpreters at a rock concert but not captioning to help caption the lyrics being sung and to help caption what's being said on stage for the listening audience? Why is it ok to have a signing concert but no captioning for those who may not be able to understand it all or do not know sign language? Why is it ok to have a Deaf Awareness Day at Six Flags as a way to help promote awareness about deaf and hard of hearing people but only provide sign language interpreters throughout the park when being deaf or hard of hearing does not mean people magically know sign language?  Communication is a two way street benefiting a variety of people with hearing loss and communication preferences. Providing captions help them feel they as if they are a part of a larger family.  

Noah Buchholz's Journey: Part 3 series

Part 2 of series

Part 1 of series

The New Stem Cells Generation - going from deaf to hearing.

The stuff of science fiction has now arrived where Madeline becomes the first of many toddlers born deaf to get their first cord- blood stem cells treatments in the effort to restore their sensorineural hearing loss. This procedure continues to show success and Madeline's hearing continues to improve.

Madeline Cooper, who is nearly 2 years old, is the first person in the nation to take part in a new Food and Drug Administration-approved study of stem cell treatment of sensorineural hearing loss.

Children’s Memorial Hermann Hospital in Houston and California-based Cord Blood Registry will eventually enroll another nine children in this first phase of the study.

Unlike some advertised stem cell treatments that may cost patients tens of thousands of dollars — and, according to critics, are little more than quackery — the Conners paid nothing to take part and have been promised no specific results.

The process is simple: Doctors inject the children with stem cells from their own stored umbilical cords. Because it is the patients’ own blood, there is little chance the treatment will produce side effects.

In theory, the treatment will adjust patients’ immune systems to encourage their bodies to repair themselves. In truth, researchers have no idea if it will work.

Earlier Italian studies on mice concluded that stem cells may help the body repair damaged cells in the ear and restore some hearing in these types of cases, according to a 2008 published report in the University of South Florida journal Cell Transplantation.

Madeline's hearing loss has gone from extreme to moderate hearing loss since undergoing the treatment. A definite improvement. This stem cell treatment will continue and may take a few years to help fully restore hearing loss. We will not know how fast this rate of restoration will take place over the next several months to a few years. We will know more once the Cooper family head back to Texas in July, and again in January of 2013, to get a more detailed assessment of Madeline’s improvement.

This will be the start of a new generation of cord-blood stem cell babies and toddlers born deaf to become, in theory, hearing with the help of their own blood-cord stem cells. An exciting era in regenerative medicine for parents of deaf children. This new cord-blood stem cell procedure was covered in my blog piece in January 2012 for your review.

Once proved successful parents of deaf babies will see this as the preferred treatment to help restore their child's hearing loss. This will certainly be a much preferable route (and cheaper, too) than to choose cochlear implant.  Now the question becomes, will this eventually destroy the cochlear implant industry? Only time will tell.

Deaf student picked for flight program

It's not often you get to see stories about deaf people becoming airplane pilots. Well, Jason Jernigan is taking up that challenge to become one of the many deaf and hard of hearing pilots in the U.S.

Florida State University Panama City senior Jason Jernigan will undertake five weeks of flight training at Purdue University in Indiana to show that his deafness is not a handicap.

Jernigan, of Youngstown, is the second deaf person to train with Able Flight to learn flight and ground operations. He is one of six men who have been chosen from across the country to win a scholarship for the third year of Able Flight-Purdue University flight training.

“I want to fly because it is one of my life goals,” Jernigan wrote in an email interview. “I really never thought I would get the opportunity. I want to conquer the challenge. I also want to show people that deaf people can do anything a hearing person can do.”

Well who doesn't want to learn how to fly an airplane? If you're up to the task, why not? Ask Stephen Hopson who made aviation history by becoming the world’s first deaf pilot to earn an instrument rating, which actually requires the use of a radio when flying though inclement weather.

Jernigan will leave Florida on Saturday for the program. He has no prior flight experience, but he has played a flying computer game. He believes the biggest challenge will be communications between him and his instructors.

“I will use sign language, iPad, a computer and UbiDuo machine,” Jernigan wrote. “Mostly I will use an UbiDuo (communications device). … [I]t should help greatly with both my pre-flight and post-flight briefing with my instructor.”

The university will benefit from expanding their training to include people with disabilities, according to Charles Stites, the executive director of Able Flight.

Good luck, Jason. Hope the skies will be friendly for ya!

Bad Advertisement during Tax Season

I drove through a town and saw this and took a picture of it when I noticed the building was empty. You can probably guess why. It's enough to make you not go in when tax season cometh. Why take the chance?

The mocking of dea(th)f...

One of the worst thing one can do is to air online in a vlog or blog the apparent glee or dispassionate display of somebody else's death who is related to a deaf person known in the deaf and hard of hearing community.  Either show a modicum of respect in your blog or vlog or don't talk about it at all.  By showing disrespect online makes that person a boorish and dispassionate soul. If it's indifference then keep it to yourself privately and away from the public view. By making it public ranks (almost) right up there on wishing the death of a deaf parent's child just because one doesn't like the deaf parent reeks of insanity.

A Dine and Sign TV Internet Show

Here's an interesting and fun show to watch called "Dine and Sign." A humorous show between a hearing son named Alex and his deaf father having some insightful and funny discussions done in sign language. There are now 35 episodes or almost 3 hours worth of shows beginning on September 26, 2011 broadcasted by Podsmiths Internet Televsion on YouTube. Since then the show has slowly gained a following.  If you want to talk and interact with the Dine and Sign please visit their Facebook page.

What makes this show fun and easy to watch is the accessibility they provide. Each show comes with captioning, signing, and a voice-over for each of the two father and son duo sparring lightheartedly with each other over a variety of topics. With a combination of communication access available it can reach a much broader audience than just the signing community. If you ever want to see what the interaction is like between a deaf father and hearing son then come and watch their first episode and catch up with the rest of their shows at your convenience. Dine and Sign, not exactly a three course meal but satisfying.


Episode one: What's the problem with long hair?

Deaf pitcher aims for pro baseball

It is not everyday you get to hear of a deaf pitcher who can pitch 90 mph fastballs and have a good chance getting into the major leagues. Scouts are certainly taking a hard look at him.

Technology is king for deaf users when it comes to communication

Technology is the key to success for deaf and hard of hearing people. It is true today and it will be more so true into the very near future when it comes to helping provide communication to deaf and hard of hearing with the rest of the world. Google has come out with a new fangled technology that has been in the works for some years called Google Glasses where it hints at speech-to-text display for deaf users:

Perhaps most interestingly, one patent shows Google is working on a system to help hard-of-hearing and deaf users detect and interpret nearby sounds. The glasses' heads-up display would show arrows and flashing lights to indicate the direction and intensity level of the sound, and even display the words nearby people are speaking. The patent, #8,183,997, was issued to Google today and is titled "Displaying sound indications on a wearable computing system." The system would integrate a speech-to-text feature that determines the text of speech and displays it for the wearer of the glasses.

This concept on augmented reality will be a boon to deaf and hard of hearing users in the near future by allowing the extra-dimension of space, time and information of sound and visuals through the use of these glasses.

Lou Ferrigno gets Envoy Esteem hearing implant

I was watching the last episode of Celebrity Apprentice when Lou Ferrigno announced during the live show that he can now hear better with his new Esteem implantable hearing device.

Lou Ferrigno, the actor who played the Hulk on the 1970s TV show "The Incredible Hulk," has begun using an implantable hearing aid from Minnesota's Envoy Medical Corp. Ferrigno, who's had hearing problems since he was young, said last weekend on the finale of Celebrity Apprentice (he was fired in April) that he received the Esteem medical implant, made by White Bear Lake-based Envoy.

In fact, this was successfully kept underwraps until Medical Envoy released a press release yesterday, the day after the show that was aired on Sunday, about Lou and his new implant and successful it was that Lou even cried once it was activated.

Profoundly hard of hearing since two years old, Lou Ferrigno revealed last night on The Celebrity Apprentice that he recently underwent a surgical procedure to restore his hearing, with the Esteem® Device, manufactured by Envoy Medical Corporation. The device is a fully implantable prosthetic cochlea stimulator, designed to do just that. It has no microphones or speakers. It is invisible. Except that Lou knows it was implanted, he has no sense of it being in his body. But he can hear. And according to Lou Ferrigno, it "is a miracle." "Lou's dream has always been to hear like everyone else," said Carla, his wife of 32 years, who encouraged Lou to have the procedure. Now, Lou says he has "natural hearing and can hear things he has never heard before or could have ever hoped to hear." Birds chirping, rain on his roof, his alarm clock in the morning (scares the heck out of him, he says laughing) the tiniest sounds of his fingers moving together, the refrigerator's quiet motor, but most importantly, the ability to hear people in everyday conversation, even in a noisy environment, like a restaurant. "Everything is so loud and so clear," says the actor, who is still trying to figure out certain, never before heard sounds. Ferrigno said he "can't wait to get his second ear done,"

The device was implanted by Dr. Michael Murray of San Jose CA, who has performed hundreds of Esteem® procedures and is booked through September. Lou Ferrigno's surgery was performed in Houston, Texas at Envoy Medical's private ("decadent," according to Murray) surgical center. The entire procedure costs approximately $37,000 for the device and the surgery, and according to Ferrigno, "is worth a lot more." Approved in a 15 to 0 unanimous, independent panel vote by the FDA, the Esteem® is indicated for moderate to severe hearing loss, in people with sensorineural hearing loss (about 85% of all hearing loss sufferers). It replaces conventional hearing aids for those who qualify. The Esteem® Device is also approved by the VA (Veterans Administration) for those who qualify and have it prescribed by their VA audiologist and ENT specialist.

The device works by leveraging the natural anatomy of a person's own body. Sound enters the ear naturally. The natural vibrations of the eardrum are sensed and sent to a microprocessor implanted under the skin behind the ear. The vibrations are intensified and sent to the cochlea via the stapes. The tiny remaining hair cells in the cochlea pick up the vibrations and send them to the brain where they are interpreted as sound. The result, according to the successful recipients, including Lou Ferrigno, is beyond anything a hearing aid can offer. Ferrigno is still amazed at how well it works. "No more hearing aids for me," Lou Ferrigno exclaims with a huge smile on his face. Tears fell from his eyes upon activation. Ferrigno, dumbfounded, said "he was advised by his audiologist not to have the procedure." "Go Figure?" said Ferrigno. Lou said he "hasn't felt this good since he won the Mr. Universe competition."

This is great for Lou. I'm sure he's happy with it as you can see.....just like Sarah Churman.

Bullying

Fortunately I have not been a victim of bullying since I don't see myself as a victim in the first place. Rather I see the perpetrator as someone who wants attention in the effort to raise his or her self-esteem by targeting certain people with their rants and hate. For years as a blogger I've been a target of bullying-tactics by a few deaf people who have graced my blogsite of time's past. The same people who have attacked those commenting in my blog comment box and used profane language against them. Ultimately I was forced to ban them from my blogsite after warning them to cease against attacking people who leave comments in my blog. Even that didn't always work because they usually find a way to continue with the attacking and bullying. But in my own wisdom I've learned to ignore those people who insist on finding ways to target me.

What prompted me to blog about this was because of an article I read on the psychology of bullying asking an interesting question, "Bullies Have Low Self-Esteem Or High Self-Esteem?"

But current research shows that most bullies actually have high self-esteem. Bullies usually have a sense of entitlement and a feeling of superiority over others, and lack compassion, impulse control and social skills. They enjoy being cruel to others and sometimes use bullying as an anger management tool, the way a normally angry person would punch a pillow. Research does support the fact that bullies have low empathy and don’t know how it feels to be in someone else’s shoes.

I never realize that a person who bully sometimes uses it as an anger management tool. That one surprised me but I certainly understand that such attitudes and actions give them the feeling of superiority over others and enjoy being cruel to them in a variety of ways over the internet.  Such cruelties include name calling, put downs, smearing, lying or going after their families or spouses by targeting them in order to get to his/her main target.

More on bullying....

As long as bullies are able to manipulate another person or a situation, their self-esteem goes up. Once bullies lose control of their victim, or realize that they can’t manipulate situations to their liking, their self-esteem goes down. This causes them to look for new victims to manipulate and control so that their self-esteem can go up again. The bullying in itself almost becomes an emotional fix that bullies need in order to feel good about themselves.

Which is why it's important to ignore certain bullies for their bullying tactics because by doing so you are not giving them any opportunity for control or the opportunity to try and manipulate you.  If you can do this  try and block the person from your blog, YouTube, Facebook or anywhere else. The bullies I've come across in the past I see them almost as the equivalent of a druggie who seeks emotional fixes in order to get that same "high." It's almost a description of  stalker looking for his/her next fix.

If you come across a bully, do not try and engage with a bully. Best weapon is to put that online bully on ignore. Or, if you can, try and ban that person. That's what I did and I was able to take that control away from the few bullies who knew no better. It takes confidence to wrest control away from an online bully by the mere simple act of ignoring the bully in the first place. You have that power.

Video of deaf film maker on deaf role models from across the pond

Deaf Echo Attack Website?

This just happened not too long ago and it concerns me a great deal regarding the security and protection for my laptop when I attempted to access Deaf Echo's website and got this warning:

I'm not sure exactly what's going on over there and people should be made aware of this. I have visited the Deaf Echo numerous times yet this Attack Page warning pop up concerned me greatly. I'm not sure what to do at this point whether to continue on or not. The Safe Browsing Client by Google in the Safe Browsing diagnostic page explains why the warning was put up.

Some of you might be wondering if this blog is a malicious blog piece aimed at the owner despite our differences. Hardly the case when I'm given the Safe Browsing diagnostic page on explaining the warning. I'm sure the owner is not aware that there might be some programs installed on his Deaf Echo community blogsite that may not be healthy for computer laptops of those visiting their website. The owner will need to rectify this problem on his own accord. Once the problem is corrected I will provide an update. I sure do like to visit Deaf Echo again.

Any computer nerds out there that can add to this piece of warning info? This is the first time a warning like this has ever happened.

UPDATE: The Google search page for "Deaf Echo" has put out a warning, too. The owner of the Deaf Echo website needs to correct whatever is causing that problem quickly.

UPDATE II:  Looks like whatever caused the warning has now been corrected.

First typewriter invention for the deaf?

There's no mention whether Pastor Rasmus Hans Johan Malling-Hansen's invention on one of the first typewriter (and perhaps the best looking and most beautiful piece of typewriter machinery of all time) produced was inspired to invent this because of his association with deaf people in Denmark.  A way to "write faster" and communicate quicker with deaf people.  I bring that up since he was the minister and principal at the Royal Institute for the Deaf-mutes in Copenhagen and that he excelled as a reformer in his field, education for the deaf and deaf-mutes.

RMH was the driving force behind the development of education for the deaf-mutes in Denmark, particularly in terms of the organizational set up and the formulation of comprehensive goals. In cooperation with Johan Keller he managed to introduce a reform in 1867, whereby the pupils were grouped according to their learning abilities and degree of hearing loss, such that they would all benefit from the kind of education and methods that were best adapted to their situation. He was behind the establishment of the institute in Fredericia in 1881 and was the driving force in the public commission of 1888, whose proposals were accepted and turned into reality after his death: The government took over the private institutes, a new institute was established in Nyborg, and all the schools for the deaf and deaf-mutes were integrated into one general organization and plan. Fredericia was selected as a pre-school at which all deaf-mutes must stay for a year in order for the teachers to assess their individual abilities and needs, before they would gain entrance to the school or institution, whose methods could cater for their specific needs and abilities in the best possible way. RMH's modern and far-sighted vision became a reality! This was well known in Scandinavia as "the Danish division (selection)" and became highly influential in the other Nordic countries.

A description about Rasmus Hans' typewriter and the first invention of the writing ball:

The writing ball was not only the first typewriter to be produced and sold in a relatively large quantity, it is also the fastest typewriter ever made, because of the unique construction of the "ball". Malling-Hansen was experimenting with the placement of the letters already in 1865 - and he succeeded in finding a placement of the letters that made the writing speed extremely fast. Not many people know that the traditional qwerty-keyboard was designed with the goal of preventing the arms from "hanging up" in each other, and in no way was designed to get the fastest writing speed - on the contrary!

I'm surmising at this point whether his typewriter and writing ball invention which was finally patented in 1870 and "mass produced" beginning in 1872 was a subconscious effort on finding ways to communicate faster and better with deaf people rather than by pen and paper. Or perhaps it was a conscious effort of his on finding ways to educate deaf people through the use of his "extremely fast" typewriter even though nothing is documented to say that was the case.  The timing of his typewriter invention occurred during a period while he was the minister and principal at the Royal Institute for the Deaf-mutes in Copenhagen and the fact that he excelled as a reformer in his field, education for the deaf and deaf-mutes would appear suspect as perhaps his primary reason to invent his typewriter was partly because of his association of all things with deaf people.

Now, if you ask me, Rasmus Hans Johan Malling-Hansen's typewriter certainly look quite steampunk to me. Quite a gorgeous piece. There are plenty of steampunk typewriters today. Perhaps the Malling-Hansen's typewriter could be put into a collection of all things steampunk deaf? 

Steampunk Deaf

Not much in the genre of steampunk of things related to deaf or hard of hearing people other than certain steampunk type of technology like a hearing aid seen in one of the steampunk blogs.

If you remember watching the movie Wild, Wild West with Will Smith and Kevin Kline you will see it has all of the element of steampunk feel to it. And then you may remember McGrath "Bloodbath"
who wore a retro looking "hearing aid" which was retro of that era, anyway.

Here's another true to its form steampunk hearing aid.

Of course, you then have steampunk hands of large proportion and I wonder if a deaf person could make two fully articulating hands of enormous size would he be able to sign with them? Boggles the mind if somebody could do that, steampunk style that is.

Here's a truly big hand.

And this one, too.

Deaf forester instructs on how to get pine cones

Here's Andy, again, a deaf silviculturist (see previous blog of him signing a story about Smokey Bear to deaf kids) who gives an instructional video about preparing for a tree climb and how to get fresh pine cones safely while working on the Coconino National Forest in Arizona. How often do you get to see a deaf forester do an instructional video on tree climbing? Pretty neat, I'd say.

Deaf forester signs to deaf kids on Smokey Bear story

Here's a deaf silviculturist who works for the U.S. Forest Service signs a story about Smokey Bear to a group of deaf kids. And the kids get a surprise visit at the end of the story.

He is one of the many deaf/hh employees who works for the U.S. Forest Service. Not often do deaf kids get exposed to a deaf person who works for the U.S. Forest Service and in full uniform, too. So, this was a great thing that Andy did for the kids that day. And speaking of Smokey Bear, here's my youngest daughter from 10 years ago at a Smokey Bear museum in Capitan, New Mexico which is the birth place of Smokey Bear.

The adventurous life and love story of Mable

Here's an interesting piece of history with a bunch of black and white photos written by the National Geographic. A piece that covers the human side on the life and adventurous times of Mabel Gardiner Hubbard (late deafened at age 5) who was married to Alexander Graham Bell. What sealed the National Geographic relationship with the Bell family was that Mable and Alexander G. Bell had two daughters together named Elsie and Daisy where Elsie grew up and married Gilbert Hovey Grosvenor who was National Geographic magazine’s first editor-in-chief. That solidified the family ties with the National Geographic company.

Gallaudet University's Rock Festival 2002

Rock Festival as it is known at Gallaudet University has been around quite awhile for well over twenty years, for me that is but this year is their 40th anniversary. If you have been at Gallaudet University long enough chances are you attended some of the Rock Festivals there.  In 2002 a hearing band called "Mutaytor" played at Gallaudet University and on their old discontinued website you can see the many pictures of 2,500 Gallaudet students rocking their night away under the thumping, reverberating blast from 6 foot tall speakers. Do you recognize anybody in those pictures? And if you went to a Rock Festival event while as a Gallaudet student, why did you go and did you like the band?  And, yes, that was 10 years ago but don't feel bad. Mine goes further back.

Noah Buchholz's Journey: Part 2 series.

Check out Noah's captioned video series Part 2 about his own communication journey.